Diabetes Care, 31, 15211526. Approaches to integrating paediatric diabetes care and structured education: Diabetes Medicine, …
PedsQL Publications
Peer Reviewed Publications
Varni, JW, Limbers, CA, Bryant, WP, Wilson, DP in press The
PedsQL Multidimensional Fatigue Scale in Type 1 diabetes: Feasibility,
reliability, and validity Pediatric Diabetes
Varni, JW, Limbers, CA, Newman, DA, Seid, M in press
Longitudinal factorial invariance of the PedsQL 40 Generic Core Scales
child self-report version: One year prospective evidence from the
California State Childrens Health Insurance Program SCHIP Quality of
Life Research,
Seid, M, Limbers, CA, Driscoll, KA, Opipari-Arrigan, LA, Gelhard,
LR, Varni, JW in press Reliability, validity, and responsiveness of
the Pediatric Quality of Life Inventory PedsQL Generic Core Scales and
Asthma Symptoms Scale in vulnerable children with Asthma Journal of
Asthma
Varni, JW, Limbers, CA, Newman, DA in press Factorial invariance
of the PedsQL 40 Generic Core Scales child self-report across gender: A
multigroup confirmatory factor analysis with 11,356 children ages 5 to 18
Applied Research in Quality of Life
Limbers, CA, Newman, DA, Varni, JW in press
Factorial invariance
of child self-report across socioeconomic status groups: A multigroup
confirmatory factor analysis utilizing the PedsQL 40 Generic Core Scales
Journal of Behavioral Medicine
Varni, JW, Limbers, CA, Burwinkle, TM, Bryant, WP, Wilson, DP
2008 The ePedsQL in Type 1 and Type 2 diabetes: Feasibility,
reliability, and validity of the Pediatric Quality of Life Inventory
Internet administration Diabetes Care, 31, 672-677
Limbers, CA, Newman, DA, Varni, JW 2008 Factorial invariance of
child self-report across age subgroups: A confirmatory factor analysis of
ages 5 to 16 years utilizing the PedsQL 40 Generic Core Scales Value in
Health, 11, 659-668
Varni, JW, Limbers, CA 2008 The PedsQL Multidimensional Fatigue
Scale in young adults: Feasibility, reliability and validity in a
university student population Quality of Life Research, 17, 105-114
Limbers, CA, Newman, DA, Varni, JW 2008 Factorial invariance of
child self-report across healthy and chronic health condition groups: A
confirmatory factor analysis utilizing the PedsQL 40 Generic Core Scales
Journal of Pediatric Psychology, 33,
630-639
Goldstein, SL, Graham, N, Warady, BA, Seikaly, M, McDonald, R,
Burwinkle, TM, Limbers, CA, Varni, JW 2008 Measuring health-
related quality of life in children with ESRD: Performance of the Generic
and ESRD-Specific Instrument of the Pediatric Quality of Life Inventory
PedsQL American Journal of Kidney Diseases, 51, 285-297
Uzark, K, Jones, K, Slusher, J, Limbers, CA, Burwinkle, TM, Varni,
JW 2008 Quality of life in children with heart disease as perceived by
children and parents Pediatrics, 121, e1060-e1067
Varni, JW, Limbers, CA, Burwinkle, TM 2007 How young can
children reliably and validly self-report their health-related quality of
life?: An analysis of 8,591 children across age subgroups with the PedsQL
40 Generic Core Scales Health and Quality of Life Outcomes, 5:1, 1-13
Varni, JW, Limbers, CA, Burwinkle, TM 2007 Parent proxy-report
of their childrens health-related quality of life: An analysis of 13,878
parents reliability and validity across age subgroups using the PedsQL 40
Generic Core Scales Health and Quality of Life Outcomes, 5:2, 1-10
Palmer, SN, Meeske, KA, Katz, ER, Burwinke, TM, Varni, JW
2007
The PedsQL Brain Tumor Module: Initial reliability and validity
Pediatric Blood and Cancer, 49, 287-293
Varni, JW, Limbers, CA, Burwinkle, TM 2007 Impaired health-
related quality of life in children and adolescents with chronic
conditions: A comparative analysis of 10 disease clusters and 33 disease
categories/severities utilizing the PedsQL 40 Generic Core Scales Health
and Quality of Life Outcomes, 5:43, 1-15
Varni, JW, Burwinkle, TM, Seid, M 2006 The PedsQL 40 as a school
population health measure: Feasibility, reliability, and validity Quality
of Life Research, 15, 203-215
Varni, JW, Burwinkle, TM, Berrin, SJ, Sherman, SA, Artavia, K,
Malcarne, VL, Chambers, HG 2006 The PedsQL in pediatric cerebral
palsy: Reliability, validity, and sensitivity of the Generic Core Scales
and Cerebral Palsy Module Developmental Medicine and Child Neurology, 48,
442-449
Chan, KS, Mangione-Smith, R, Burwinkle, TM, Rosen, M, Varni, JW
2005 The PedsQL: Reliability and validity of the Short-Form Generic
Core Scales and Asthma Module Medical Care, 43, 256-265
Varni, JW, Burwinkle, T M, Seid, M 2005 The PedsQL as a
pediatric
patient-reported outcome: Reliability and validity of the PedsQL
Measurement Model in 25,000 children Expert Review of Pharmacoeconomics
and Outcomes Research, 5, 705-719
Varni, JW, Burwinkle, TM, Szer, IS 2004 The PedsQL
Multidimensional Fatigue Scale in pediatric rheumatology: Reliability and
validity Journal of Rheumatology, 31, 2494-2500
Varni, JW, Burwinkle, TM, Rapoff, MA, Kamps, JL, Olson, N
2004 The PedsQL in pediatric asthma: Reliability and validity of the
Pediatric Quality of Life Inventory Generic Core Scales and Asthma Module
Journal of Behavioral Medicine, 27, 297-318
Varni, JW, Burwinkle, TM, Seid, M, Skarr, D 2003 The PedsQL 40
as a pediatric population health measure: Feasibility, reliability, and
validity Ambulatory Pediatrics, 3, 329-341
Varni, JW, Burwinkle, TM, Jacobs, JR, Gottschalk, M, Kaufman, F,
Jones, KL 2003 The PedsQL in Type 1 and Type 2 diabetes: Reliability
and validity of the Pediatric Quality of Life Inventory Generic Core
Scales and Type 1 Diabetes Module Diabetes Care, 26, 631-637
Uzark, K, Jones, K, Burwinkle, TM, Varni, JW 2003 The Pediatric
Quality of Life
Inventory in children with heart disease Progress in
Pediatric Cardiology, 18, 141-148
Varni, JW, Burwinkle, TM, Katz, ER, Meeske, K, Dickinson, P
2002 The PedsQL in pediatric cancer: Reliability and validity of the
Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional
Fatigue Scale, and Cancer Module Cancer, 94, 2090-2106
Varni, JW, Seid, M, Knight, TS, Burwinkle, TM, Brown, J, Szer,
IS 2002 The PedsQL in pediatric rheumatology: Reliability, validity,
and responsiveness of the Pediatric Quality of Life Inventory Generic Core
Scales and Rheumatology Module Arthritis and Rheumatism, 46, 714-725
Varni, JW, Seid, M, Knight, TS, Uzark, K, Szer, IS 2002 The
PedsQL 40 Generic Core Scales: Sensitivity, responsiveness, and impact on
clinical decision-making Journal of Behavioral Medicine, 25, 175-193
Varni, JW, Seid, M, Kurtin, PS 2001 PedsQL 40: Reliability and
validity of the Pediatric Quality of Life Inventory Version 40 Generic
Core Scales in healthy and patient populations Medical Care, 39, 800-812
Varni, JW, Seid, M, Rode, CA 1999 The PedsQL: Measurement model
for the Pediatric Quality of Life Inventory
Medical Care, 37, 126-139
Additional Publications
Parekh, AD, Thomas, JC, Trusler, L, Ankerst, DP, Deshpande, JK,
Adams, MC, Pope, JC, Brock, JW in press Prospective evaluation
of health related quality of life for pediatric patients with ureteropelvic
junction obstruction Journal of Urology
Huang, IC, Shenkman, EA, Leite, W, Knapp, CA, Thompson, LA,
Revicki, DA in press Agreement was not found in adolescents quality
of life rated by parents and adolescents Journal of Clinical Epidemiology
Young, NL, Varni, JW, Snider, L, McCormick, A, Sawatzky, B, Scott,
M, King, G, Hetherington, R, Sear, E, Nicholas, D in press The
Internet is valid and reliable for child-report: An example using the ASK
and PedsQL Journal of Clinical Epidemiology
Nuboer, R, Borsboom, GJ, Zoethout, JA, Koot, HM, Bruining, J in
press Effects of insulin pump vs injection treatment on quality of life
and impact of disease in children with type1 diabetes mellitus in a
randomized, prospective comparison Pediatric Diabetes,
Modi, AC, Zeller, MH in press Validation of a parent-proxy,
obesity-specific quality of life measure: Sizing them up Obesity
Majnemer,
A, Shevell, M, Law M, Poulin, C, Rosenbaum, P in press
Reliability in the ratings of quality of life between parents and their
children of school age with cerebral palsy Quality of Life
Modi, AC, Loux, TJ, Bell, SK, Harmon, CM, Inge, TH, Zeller,
MH in press Weight-specific health-related quality of life in
adolescents with extreme obesity Obesity,
Davis, E, Davies, B, Waters, E, Priest, N in press The
relationship between proxy reported health-related quality of life and
parental distress: Gender differences Child: Care, Health and Development
Hinds, PS, Billups, CA, Cao, X, Gattuso, JS, Burghen, E, West, N,
Rubnitz, JE, Daw, NC in press Health-related quality of life in
adolescents at the time of diagnosis with osteosarcoma or acute myeloid
leukemia European Journal of Oncology Nursing
Emmanouilidou, E, Galli-Tsinopoulou, A, Karavatos, A Nousia-
Arvanitakis, S in press Quality of life of children and adolescents
with diabetes of Northern Greek origin Hippokratia
Palta, M, Sadek-Badawi, M 2008 PedsQL relates to function and
behavior in very low and normal birth weight 2- and 3-year-olds from
a
regional cohort Quality of Life Research, 17, 691-700
Greenley, RN, Josie, KL Drotar, D 2008 Self-reported quality of
life among inner-city youth with asthma An empirical examination of the
PedsQL 30 Asthma Module Annals of Allergy, Asthma and Immunology, 100,
106-111
Banks, BA, Barrowman, NJ, Klaassen, R 2008 Health-related quality
of life: Changes in children undergoing chemotherapy Journal of Pediatric
Hematology/Oncology, 30, 292-297
de Wit, M, de Waal, HA, Alle Bokma, J, Haasnoot, K, Houdijk, MC,
Gemke, RJ, Snoek, FJ 2008 Monitoring and discussing health related
quality of life in adolescents with type 1 diabetes improves psychosocial
well-being: A randomized controlled trial Diabetes Care, 31, 1521-1526
Panepinto, JA, Pajewski, NM, Foerster, LM, Hoffmann, RG 2008
The performance of the PedsQL Generic Core Scales in children with sickle
cell disease Journal of Pediatric Hematology/Oncology, 30, 666-673
Reinfjell, T, Hjemdal, O, Aune, T, Vikan, A, Diseth, TH 2008 The
Pediatric Quality of Life Inventory PedsQL 40 as an assessment measure
for depressive symptoms: A correlational study with young adolescents
Nordic Journal of
Psychiatry, 62, 279-286
Wade, TJ, Mansour, ME, Line, K, Huentelman, T, Keller, KN 2008
Improvements in health-related quality of life among school-based health
center users in elementary and middle school Ambulatory Pediatrics, 8, 241-
249
Naughton, MJ, Ruggiero, AM, Lawrence, JM, Imperatore, G,
Klingensmith, GJ Waitzfelder, B, McKeown, RE, Standiford, DA, Liese,
AD, Loots, B 2008 Health-related quality of life of children and
adolescents with type 1 or type 2 diabetes mellitus: SEARCH for Diabetes In
Youth Study Archives of Pediatrics and Adolescent Medicine, 162, 649-657
Hommel, KA, Davis, CM, Baldassano, RN 2008 Medication adherence
and quality of life in pediatric inflammatory bowel disease Journal of
Pediatric Psychology, 33, 867-874
Yackobovitch-Gavan, M, Nagelberg, N, Demol, S, Phillip, M, Shalitin,
S in press Influence of weight-loss diets with different macronutrient
compositions on health-related quality of life in obese youth Appetite,
Russo, RN, Goodwin, EJ, Miller, MD, Haan, EA, Connell, TM,
Crotty, M in press Self-esteem, self-concept, and quality of life in
children with hemiplegic cerebral palsy Journal of
Pediatrics,
Mah, JK, Thannhauser, JE, Kolski, H, Dewey, D 2008 Parental
stress and quality of life in children with neuromuscular disease
Pediatric Neurology, 39,102-107
Cheuk, DK, Mok, AS, Lee, AC, Chiang, AK, Ha, SY, Lau, YL,
Chan, GC in press Quality of life in patients with transfusion-
dependent thalassemia after hematopoietic SCT Bone Marrow Transplantation
Allan, CT, Flett, B, Dean, HJ in press Quality of life in First
Nation youth with type 2 diabetes Maternal and Child Health Journal
Redman, TA, Finn, JC, Bremner, AP, Valentine, J in press Effect
of upper limb botulinum toxin-A therapy on health-related quality of life
in children with hemiplegic cerebral palsy Journal of Paediatrics and
Child Health
Matziou, V, Perdikaris, P, Feloni, D, Moshovi, M, Tsoumakas, K,
Merkouris, A in press Cancer in childhood Childrens and parents
aspects for quality of life European Journal of Oncology Nursing
Gkoltsiou, K, Dimitrakaki, C, Tzavara, C, Papaevangelou, V, Varni,
JW, Tountas, Y 2008 Measuring health-related quality of life in Greek
children: Psychometric properties of the Greek version of the
Pediatric
Quality of Life Inventory 40 Generic Core Scales Quality of Life
Research, 17, 299-305
Kook, SH, Varni, JW 2008 Validation of the Korean version of the
Pediatric Quality of Life Inventory 40 PedsQL Generic Core Scales in
school children and adolescents using the Rasch model Health and Quality
of Life Outcomes, 6:41,1-15
Felder-Puig, R, Baumgartner, M, Topf, R, Gadner, H, Formann, AK
2008 Health-related quality of life in Austrian elementary school
children Medical Care, 46, 432-439
Felder-Puig, R, Topf, R, Gadner, H, Formann, AK in press
Measuring health-related quality of life in children from different
perspectives using the Pediatric Quality of Life Inventory PedsQL and
teachers ratings Journal of Public Health
Janssens, L Gorter, JW, Ketelaar, M, Kramer, WL, Holtslag, HR
2008 Health-related quality of life measures for long-term follow-up in
children after major trauma Quality of Life Research, 17, 701-713
Wood, LJ, Sherman, E, Hamiwka, LD, Blackman, M, Wirrel E 2008
Depression, anxiety, and quality of life in siblings of children with
intractable epilepsy Epilepsy and Behavior, 13,
144-148
Laaksonen, C, Aromaa, M, Heinonen, OJ, Koivusilta, L, Koski, P,
Suominen, S, Vahlberg, T, Salantera, S 2008 Health related quality of
life in 10-year-old schoolchildren Quality of Life Research, 17, 1049-
1054
Russo, RN, Miller, MD, Haan, F, Cameron, ID, Crotty, M 2008
Pain characteristics and their association with quality of life and self-
concept in children with hemiplegic cerebral palsy Clinical Journal of
Pain, 24, 335-342
Maher, CA, Olds, T, Williams, MT, Lane, AE 2008 Self-reported
quality of life in adolescents with cerebral palsy Physical and
Occupational Therapy in Pediatrics, 28, 41-57
Scarpelli, AC, Paiva, SM, Pordeus, IA, Varni, JW, Viegas, CM,
Allison, PJ 2008 The Pediatric Quality of Life Inventory PedsQL
Family Impact Module: Reliability and validity of the Brazilian version
Health and Quality of Life Outcomes, 6:35, 1-8
Calvert, S, Miller, HE, Curran, A, Hameed, B, McCarter, R, Edwards,
RJ, Hunt, L, Sharples, PM 2008 The Kings outcome scale for
childhood head injury and injury severity and outcome measures in children
with traumatic brain injury Developmental Medicine and Child
Neurology,
Roizen, M, Rodriguez, S, Bauer, G, Medin, G, Bevilacqua, S, Varni,
JW, Dussel, V 2008 Initial validation of the Argentinean Spanish
version of the PedsQL 40 Generic Core Scales in children and adolescents
with chronic diseases: Acceptability and comprehensibility in low-income
settings Health and Quality of Life Outcomes, 6:59, 1-15
Sung, V, Hiscock, H, Sciberras, E, Efron, D 2008 Sleep problems in
children with attention-deficit/hyperactivity disorder: Prevalence and the
effect on the child and family Archives of Pediatrics Adolescent
Medicine, 162, 336-342
McClellan, CB, Schatz, J, Sanchez, C, Roberts, CW in press
Validity of the Pediatric Quality of Life Inventory for youth with sickle
cell disease Journal of Pediatric Psychology
Limbers, CA, Turner, E, Varni, JW in press Promoting healthy
lifestyles: Behavior modification and motivational interviewing in the
treatment of childhood obesity Journal of Clinical Lipidology
Klatchoian, DA, Len, CA, Terreri, MT, Silva, M, Itamoto, C,
Ciconelli, RM, Varni, JW, Hilário, MOE 2008 Quality of life of
children and adolescents from Sao Paulo: Reliability
and validity of the
Brazilian version of the Pediatric Quality of Life Inventory Version 40
Generic Core Scales Jornal de Pediatria Brazilian Journal of Pediatrics,
84, 308-315
Vetter, TR 2008 A clinical profile of a cohort of patients referred to
an anesthesiology-based pediatric chronic pain medicine program Anesthesia
and Analgesia, 106, 786-794
Clarke, MC, Chow, CS, Chase, JW, Gibb, S, Hutson, JM, Southwell,
BR 2008 Quality of life in children with slow transit constipation
Journal of Pediatric Surgery, 43, 320-324
De Bolle, M, De Clercq, B, De Fruyt, F, Benoit, Y 2008 Self and
parental perspectives on quality of life in children with cancer Journal
of Psychosocial Oncology, 26, 35-47
Lampard, AM, Byrne, SM, Zubrick, SR, Davis, EA 2008 Parents
concern about their childrens weight International Journal of Pediatric
Obesity, 3, 84-92
Langer, MM, Hill, CD, Thissen, D, Burwinkle, TM, Varni, JW,
DeWalt, DA 2008 Item response theory detected differential item
functioning between healthy and ill children in quality-of-life measures
Journal of Clinical Epidemiology, 61, 268-276
Perrin, JM, Kuhlthau, K, Chughtai, A, Romm, D
Kirschener, BS, Ferry
GD, Cohen, SA, Gold, BD, Heyman, MB, Baldassano, RN, Winter,
HS 2008 Measuring quality of life in pediatric patients with
inflammatory bowel disease: Psychometric and clinical characteristics
Journal of Pediatric Gastroenterology and Nutrition, 46, 164-171
Carno, MA, Ellis, E, Anson, E, Kraus, R, Black, J, Short, R,
Connolly, HV 2008 Symptoms of sleep apnea and polysomnography as
predictors of poor quality of life in overweight children and adolescents
Journal of Pediatric Psychology, 33, 269-278
Uneri, OS, Agaoglu, B, Coskun, A, Memik, NC 2008 Validity and
reliability of Pediatric Quality of Life Inventory for 2- to 4-year-old and
5- to 7-year-old Turkish children Quality of Life Research, 17, 307-315
Scarpelli, AC, Paiva, SM, Pordeus, IA, Ramos-Jorge, ML, Varni,
JW, Allison, PJ 2008 Measurement properties of the Brazilian
version of the Pediatric Quality of Life Inventory PedsQL Cancer Module
Scale Health and Quality of Life Outcomes, 6:7, 1-11
Huguet, A, Miro, J 2008 Development and psychometric evaluation of a
Catalan self- and interviewer-administered version of the Pediatric
Quality
of Life Inventory Version 40 Journal of Pediatric Psychology, 33, 63-79
Upton, P, Lawford, J, Eiser, C 2008 Parent-child agreement across
child health-related quality of life instruments: A review of the
literature Quality of Life Research, 17, 895-913
Newcombe, PA, Sheffield, JK, Juniper, EF, Marchant, JM, Halsted,
RA, Masters, IB, Chang, AB 2008 Development of a parent-proxy
quality of life chronic cough-specific questionnaire: Clinical impact vs
psychometric evaluations Chest, 133, 386-395
Lau, L, Stuurman, K, Weitzman, S 2008 Skeletal langerhans cell
histiocytosis in children: Permanent consequences and health-related
quality of life in long-term survivors Pediatric Blood and Cancer, 50, 607-
612
Winner, P 2008 Pediatric headache Current Opinion in Neurology, 21, 316-
322
Chiang, YC, Hinds, PS, Yeh, CH, Yang, CP 2008 Development and
psychometric testing of a Chinese version of the fatigue scale-children in
Taiwan Journal of Clinical Nursing, 17, 1201-1210
Chen, X, Origasa, H, Ichida, F, Kamibeppu, K, Varni, JW 2007
Reliability and validity of the Pediatric Quality of Life Inventory
PedsQL Short Form 15
Generic Core Scales in Japan Quality of Life
Research, 16, 1239-1249
Fullerton, G, Tyler, C, Johnston, CA, Vincent, JP, Harris, GE,
Foreyt, JP 2007 Quality of life in Mexican-American children following
a weight management program Obesity, 15, 2553-2556
Ravens-Sieberer, U, Gosch, A, Rajmil, L, Erhart, M, Bruil, J, Power,
M, Duer, W, Auquier, P, Cloetta, B, Czemy, L, Mazur, J, Czimbalmos,
A, Tountas, Y, Hagquist, C, Kilreo, J 2008 The Kidscreen-52
quality of life measure for children and adolescents Psychometric results
from a cross-sectional survey in 13 European countries Value in Health,
11, 645-658
Reinfjell, T, Lofstad, GE, Veenstra, M, Vikan, A, Diseth, TH
2007 Health-related quality of life and intellectual functioning in
children in remission from acute lymphoblastic leukaemia Acta Paediatrica,
96, 1280-1285
Hill, CD, Edwards, MC, Thissen, D, Langer, MM, Wirth, RJ,
Burwinkle, TM, Varni, JW 2007 Practical issues in the application
of item response theory: A demonstration using items from the Pediatric
Quality of Life Inventory PedsQL 40 Generic Core Scales Medical Care,
45, S39-S47
Hutchings, HA,
Upton, P, Cheung, WY, Maddocks, A, Eiser, C,
Williams, JG, Russell, IT, Jackson, S, Jenney, MEM 2008
Development of a parent version of the Manchester-Minneapolis quality of
life survey for use by parents and carers of UK children Health and
Quality of Life Outcomes, 6:19
Cuomo, AV, Gamradt, SC, Kim, CO, Pirpiris, M, Gates, PE, McCarthy,
JJ Otsuka, NY 2007 Health-related quality of life outcomes improve
after multilevel surgery in ambulatory children with cerebral palsy
Journal of Pediatric Orthopaedics, 27, 653-657
Gurney, JG, Tersak, JM, Ness, KK, Landier, W, Matthay, KK,
Schmidt, ML 2007 Hearing loss, quality of life, and academic problems
in long-term neuroblastoma survivors: A report from the Childrens Oncology
Group Pediatrics, 120, e1229-e1236
Josie, KL, Greenley, RN, Drotar, D 2007 Health-related quality of
life measures for children with asthma: Reliability and validity of the
Childrens Health Survey for Asthma and the Pediatric Quality of Life
Inventory 30 Asthma Module Annals of Allergy, Asthma and Immunology, 98,
218-224
Holterman, AX, Browne, A, Dillard, BE, Tussing, L, Gorodner, V,
Stahl, C,
Browne, N, Labott, S, Herdegen, J, Guzman, G, Rink, A,
Nwaffo, I, Galvani, C, Horgan, S, Holterman, M 2007 Short-term
outcome in the first 10 morbidly obese adolescent patients in the FDA-
approved trial for Laparoscopic adjustable gastric banding Journal of
Pediatric Gastroenterology and Nutrition, 45, 465-473
Varni, JW, Burwinkle, TM, Limbers, CA, Szer, IS 2007 The
PedsQL as a patient-reported outcome in children and adolescents with
fibromyalgia: An analysis of OMERACT domains Health and Quality of Life
Outcomes, 5:9, 1-12
Varni, JW, Limbers, CA, Burwinkle, TM 2007 Literature review:
Health-related quality of life measurement in pediatric oncology: Hearing
the voices of the children Journal of Pediatric Psychology, 32, 1151-1163
Vetter, TR 2007 A primer on health-related quality of life in chronic
pain medicine Anesthesia and Analgesia, 104, 703-718
Majnemer, A, Shevell, M, Rosenbaum, P, Law M, Poulin, C 2007
Determinants of life quality in school-age children with cerebral palsy
Journal of Pediatrics, 151, 470-475
Laplant, MM, Adams, BS, Haftel, HM, Chervin, RD in press
Insomnia and quality of life in
children referred for limb pain Journal of
Rheumatology
Bitsko, MJ, Stern, M, Dillon, R, Russell, EC, Laver, J in press
Happiness and time perspective as potential mediators of quality of life
and depression in adolescent cancer Pediatric Blood and Cancer
Abresch, RT, McDonald, DA, Widman, LM, McGinnis, K, Hickey, KJ
2007 Impact of spinal cord dysfunction and obesity on the health-related
quality of life of children and adolescents Journal of Spinal Cord
Medicine, 30, S112-S118
Janicke, DM, Marciel, KK, Ingerski, LM, Novoa, W, Lowry, KW,
Sallinen, BJ, Silverstein, JH 2007 Impact of psychosocial factors
on quality of life in overweight youth Obesity, 15, 1799-1807
Murphy, HR, Wadham, C Rayman, G, Skinner, TC in press Approaches
to integrating paediatric diabetes care and structured education:
Experiences from the Families, Adolescents, and Childrens Teamwork Study
FACTS Diabetes Medicine,
Storch, EA, Merlo, LJ, Lack, C, Milsom, VA, Geffken, GR, Goodman,
WK, Murphy, TK 2007 Quality of life in youth with Tourettes
Syndrome and chronic tic disorder Journal of Clinical Child and Adolescent
Psychology, 36, 217-227
Damiano,
PC, Tyler, MC, Romitti, PA, Momany, ET, Jones, MP,
Canady, JW, Karnell, MP, Murray, JC 2007 Health-related quality
of life among preadolescent children with oral clefts: The mothers
perspective Pediatrics, 120, e283-e290
Cakin Memik, N, Agaoglu, B, Coskun, AS, Uneri, O, Karakaya, I2007
The validity and reliability of the Turkish Pediatric Quality of Life
Inventory for children 13-18 years old Turk Psikiyatri Derg Turkish
Journal of Psychiatry, 18, 353-363
Packman, W, Henderson, SL, Mehta, I, Ronen, R Danner, D, Chesterman,
B, Packman, S 2007 Psychosocial issues in families affected by maple
syrup urine disease Journal of Genetic Counseling,
Chung, PJ, Garfield, CF, Elliott, MN, Carey, C, Eriksson, C,
Schuster, MA 2007 Need for and use of family leave among parents of
children with special health care needs Pediatrics, 119, e1047-e1055
Hankins, J, Hinds, P, Day, S, Carroll, Y, Li, CS, Garvie, P, Wang,
W 2007 Therapy preferences and decision-making among patients with
severe sickle cell anemia and their families Pediatric Blood and Cancer,
48, 705-710
Hiscock, H, Canterford, L, Ukoumunne, OC, Wake, M 2007
Adverse
associations of sleep problems in Australian preschoolers: National
population study Pediatrics, 119, 865-93
Penn, A, Lowis, SP, Hunt, LP, Shortman, RI, Stevens, MC, McCarter,
RL, Curran, AL, Sharpies, PM 2007 Health related quality of life
in the first year after diagnosis in children with brain tumors compared
with matched healthy controls: A prospective longitudinal study European
Journal of Cancer
Berrin, SJ, Malcarne, VL, Varni, JW, Burwinkle, TM, Sherman, SA,
Artavia, K, Chambers, HG 2007 Pain, fatigue, and school functioning
in children with cerebral palsy: A path-analytic model Journal of
Pediatric Psychology, 32, 330-337
Laaksonen, C, Aromaa, M, Heinonen, OJ, Suominen, S, Salantera, S
2007 Pediatric health-related quality of life instrument for primary
school children: Cross-cultural validation Journal of Advanced Nursing,
59, 542-550
Ingerski, LM, Janicke, DM, Silverstein, JH 2007 Quality of life
in overweight youth: The role of multiple informants and perceived social
support Journal of Pediatric Psychology, 32, 869-874
Hughes, AR, Farewell, K, Harris, D, Reilly, JJ 2007 Quality of
life in a clinical
sample of obese children International Journal of
Obesity, 31, 39-44
Makari, J, Zaborskis, A, Labanauskas, L, Rageliene, L 2007 The
quality of life of children suffering from oncologic diseases in Lithuania
Medicina, 43, 726-735
Lai, JS, Cella, D, Kupst, MJ, Holm, S, Kelly, ME, Bode, RK
2007 Measuring fatigue for children with cancer: Development and
validation of the Pediatric Functional Assessment of Chronic Illness
Therapy-Fatigue pedsFACIT-F Journal of Pediatric Hematology/Oncology,
29, 471-479
de Wit, M, Delemarre-van de Waal, HA, Pouwer, F, Gemke, RJ, Snoek,
FJ 2007 Monitoring health-related quality of life in adolescents with
diabetes: A review of measures Archives of Disease in Childhood, 92, 434-
439
Tyler, C, Johnston, CA, Fullerton, G, Foreyt, JP 2007 Reduced
quality of life in very overweight Mexican American adolescents Journal
of Adolescent Health, 40, 366-368
Klaassen, RJ, Blanchette, VS, Barnard, D, Wakefield, CD, Curtis, C,
Bradley, CS, Neufeld, EJ, Buchanan, GR, Silva, MP, Chan, AK,
Young, NL 2007 Validity, reliability, and responsiveness of a new
measure of health-related quality of
life in children with immune
thrombocytopenic purpura: The Kids ITP Tools Pediatrics, 150, 510-515
Young, HK, Lowe, A, Fitzgerald, DA, Seton, C, Waters, KA, Kenny,
E, Hynan, LS, Iannaccone, ST, North, KN, Ryan, MM 2007
Outcome of noninvasive ventilation in children with neuromuscular disease
Neurology, 68, 198-201
Talarska, D, Zgorzalewicz-Stachowiak, M 2007 The influence of
selected factors on the quality of life of children with headaches
Advances Medical Science, 52, Suppl 1, 123-125
Wong, BL, Hynan, LS, Iannaccone, ST 2007 A randomized, placebo-
controlled trial of creatine in children with spinal muscular atrophy
Journal of Clinical Neuromuscular Disease, 8, 101-110
Ravens-Sieberer, U, Auquier, P, Erhart, M, Gosch, A, Rajmil, L, Bruil,
J, Power, M, Duer, W, Cloetta, B, Czemy, L, Mazur, J, Czimbalmos, A,
Tountas, Y, Hagquist, C, Kilroe, J 2007 The Kidscreen-27 quality of
life measure for children and adolescents: Psychometric results from a
cross-cultural survey in 13 European countries Quality of Life Research,
Robitail, S, Ravens-Sieberer, U, Simeoni, MC, Rajmil, L, Bruil, J,
Power, M, Duer, W, Cloetta, B,
Czemy, L, Mazure, J, Czimbalmos, A,
Tountas, Y, Hagquist, C, Kilroe, J, Auquier, P 2007 Testing the
structural and cross-cultural validity of the Kidscreen-27 quality of life
questionnaire Quality of Life Research,
Simenoni, MC, Schmidt, S, Muehlan, H, Debensason, D, Bullinger, M
2007 Field testing of a European quality of life instrument for children
and adolescents with chronic conditions: The 37-item Disabkids chronic
generic module Quality of Life Research, 16, 881-893
Oeffinger, D, Gorton, G, Bagley, A, Nicholson, D, Barnes, D, Calmes,
J, Abel, M, Damiano, D, Kryscio, R, Rogers, S Tylkowski, C 2007
Outcome assessments in children with cerebral palsy Part I: descriptive
characteristics of GMFCS levels I to III Developmental Medicine and Child
Neurology, 49, 172-180
Russo, RN, Crotty, M, Miller, MD, Murchland, S, Flett, P, Haan, E
2007 Upper-limb botulinum toxin A injection and occupational therapy in
children with hemiplegic cerebral palsy identified from a population
register: A single-blind, randomized, controlled trial Pediatrics, 119,
e1149-1158
Chak, MH, Rahi, JS, Bccig, BC 2007 The quality of life of
children
with congenital cataract: Findings of the British Congenital
Cataract Study British Journal of Ophthalmology,
Stern, M, Mazzero, SE, Gerke, CK, Porter, JS, Bean, MK, Laver,
JH 2007 Gender, ethnicity, psychosocial factors, and quality of life
among severely overweight, treatment-seeking adolescents Journal of
Pediatric Psychology, 32, 90-94
Hutchings, HA, Upton, P, Cheung, WY, Maddocks, A, Eiser, C,
Williams, J, Russell, I, Jackson, S, Jenny, M in press Adaptation
of the Manchester-Minneapolis quality of life survey for use in the UK
population Archives of Disease in Childhood
Hainsworth, KR, Davies, WH, Khan, KA, Weisman, SJ in press
Development and preliminary validation of the child activity limitations
questionnaire: Flexible and efficient assessment of pain-related functional
disability Journal of Pain
Dowie, R, Mistry, H, Young, TA, Weatherburn, GC, Gardiner, HM,
Rigby, M, Rowlinson, GV, Franklin RC 2007 Telemedicine in
pediatric and perinatal cardiology: Economic evaluation of a service in
English hospitals International Journal of Technology Assessment in Health
Care, 23, 116-125
Bagley, AM,
Gorton, G, Oeffinger, D, Barnes, D, Calmes, J, Nicholson,
D, Damiano, D, Abel, M, Kryscio, R, Rogers, S, Tylkowski, C 2007
Outcomes assessments in children with cerebral palsy Part II:
discriminatory ability of outcome tools Developmental Medicine and Child
Neurology, 49, 181-186
deBeer, M, Hofsteenge, GH, Koot, H, Hirasing, R, Delemarre-van de
Waal, H, Gemke, R 2007 Health-related quality of life in obese
adolescents is decreased and inversely related to BMI Acta Paediatrica,
Beijen, SW, Snik, AF, Mylanus, EA 2007 Sound localization
ability of young children with bilateral cochlear implants Otology and
Neurotology, 28, 479-485
Barr, L, Thibeault, SL, Muntz, H, de Serres, L 2007 Quality of
life in children with velopharyngeal insufficiency Archives of
Otolaryngology and Head and Neck Surgery, 133, 224-229
Brosig, CL, Mussatto, KA, Kuhn, EM, Tweddell, JS 2007
Psychosocial outcomes for preschool children and families after surgery for
complex congenital heart disease Pediatric Cardiology, 28, 255-262
Sullivan, E, Barnes, D, Linton, JL, Calmes, J, Damiano, D, Oeffinger,
D, Bagley, AM, Gorton, G,
Nicholson, D, Rogers, S, Tylkowski, C
2007 Relationships among functional outcomes measures used for assessing
children with ambulatory CP Developmental Medicine and Child Neurology,
49, 338-344
Oladeji, O, Johnston, TE, Smith, BT, Mulcahey, MJ, Betz, RR,
Lauer, RT 2007 Quality of life in children with spinal cord injury
Pediatric Physical Therapy, 19, 296-300
Chiu, MC, Ng, CF, Lee, LP, Lai, WM, Lau, SC 2007 Automated
peritoneal dialysis in children and adolescents - benefits: A survey of
patients and parents on health-related quality of life Peritoneal Dialysis
International, 27, S138-S142
Varni, JW, Lane, MM, Burwinkle, TM, Fontaine, EN, Youssef, NN,
Schwimmer, JB, Pardee, PE, Pohl, JF, Easley, DJ 2006 Health-
related quality of life in pediatric patients with irritable bowel
syndrome: A comparative analysis Journal of Developmental and Behavioral
Pediatrics, 27, 451-458
Seid, M, Varni, JW, Cummings, L, Schonlau, M 2006 The impact of
realized access to care on health-related quality of life: A two-year
prospective cohort study of children in the California State Childrens
Health Insurance Program Journal of
Pediatrics, 149, 354-361
Razzouk, BI, Hord, JD, Hockenberry, M, Hinds, PS, Feusner, J,
Williams, D, Rackoff, WR 2006 Double-blind, placebo-controlled
study of quality of life, hematologic endpoints, and safety of weekly
epoetin alfa in children with cancer receiving myelosuppressive
chemotherapy Journal of Clinical Oncology, 24, 3583-3589
Varni, JW, Burwinkle, TM 2006 The PedsQL as a patient-reported
outcome in children and adolescents with Attention-Deficit/Hyperactivity
Disorder Health and Quality of Life Outcomes, 426, 1-10
Goldstein, SL, Graham, N, Burwinkle, TM, Warady, B, Farrah, R,
Varni, JW 2006 Health-related quality of life in pediatric patients
with ESRD Pediatric Nephrology, 21, 846-850
McCarthy, ML, Mackenzie, EJ, Durbin, DR, Aitken, ME, Jaffe, KM,
Paidas, CN, Slomine, BS, Dorsch, AM, Christensen, JR, Ding, R
2006 Health-related quality of life during the first year after
traumatic brain injury Archives of Pediatrics and Adolescent Medicine,
160, 252-260
Connelly, M, Rapoff, MA 2006 Assessing health-related quality of
life in children with recurrent headache: Reliability and
validity of the
PedsQL 40 in a pediatric sample Journal of Pediatric Psychology, 31, 698-
702
Sherman, SA, Eisen, S, Burwinkle, TM, Varni, JW 2006 The PedsQL
Present Functioning Visual Analogue Scales: Preliminary reliability and
validity Health and Quality of Life Outcomes, 4:75, 1-10
Oddson, BE, Clancy, CA, McGrath, PJ 2006 The role of pain in
reduced quality of life and depressive symptomology in children with spina
bifida Clinical Journal of Pain, 22, 784-789
Hassan, K, Loar, R, Anderson, BJ, Heptulla, RA 2006 The role of
socioeconomic status, depression, quality of life, and glycemic control in
type 1 diabetes mellitus Journal of Pediatrics, 149, 526-531
Meeske, KA, Patel, SK, Palmer, SN, Nelson, MB, Parow AM
2006 Factors associated with health-related quality of life in pediatric
cancer survivors Pediatric Blood and Cancer,
Mah, JK, Tough, S, Fung, T, Douglas-England, K, Verhoef, M 2006
Adolescent quality of life and satisfaction with care Journal of
Adolescent Health, 38, 607e1-607e7
Zeller, MH, Roehrig, HR, Modi, AC, Inge, TH 2006 Health-
related quality of life and depressive symptoms in adolescents with
extreme
obesity presenting for bariatric surgery Pediatrics, 117, 1155-1161
Felder-Puig, R, diGallo, A, Waldenmair, M, Norden, P, Winter, A,
Gadner, H, Topf, R 2006 Health-related quality of life of pediatric
patients receiving allogeneic stem cell or bone marrow transplantation:
Results of a longitudinal, multi-center study Bone Marrow Transplantation,
38, 119-126
Hays, RM, Valentine, J, Haynes, G, Geyer, JR, Villareale, N,
McKinstry, B, Varni, JW, Churchill, SS 2006 The Seattle Pediatric
Palliative Care Project: Effects on family satisfaction and health-related
quality of life Journal of Palliative Medicine, 9, 716-728
Willis, CD, Gabbe, BJ, Butt, W, Cameron, PA 2006 Assessing
outcomes in paediatric trauma populations Injury, 37, 1185-1196
Cremeens, J, Eiser, C, Blades, M 2006 Factors influencing agreement
between child self-report and parent proxy-reports on the Pediatric Quality
of Life Inventory 40 PedsQL Generic Core Scales Health and Quality of
Life Outcomes, 4:58
Valenzuela, JM, Patino, AM, McCullough, J, Ring, C, Sanchez, J,
Eidson, M, Nemery, R, Delamater, AM 2006 Insulin pump therapy and
health-related quality of
life in children and adolescents with Type 1
diabetes Journal of Pediatric Psychology, 31, 650-660
Brunner, HI, Taylor, J, Britto, MT, Corcoran, MS, Kramer, SL,
Melson, PG, Kotagal, UR, Graham, TB, Passo, MH 2006
Differences in disease outcomes between Medicaid and privately insured
children: Possible health disparities in juvenile rheumatoid arthritis
Arthritis Care and Research, 55, 378-384
Thomas, C, Mitchell, P, ORourke, P, Wainwright, C 2006 Quality of
life in children and adolescents with cystic fibrosis managed in both
regional outreach and cystic fibrosis center settings in Queensland
Journal of Pediatrics, 148, 508-516
Ding, R, McCarthy, ML, Houseknecht, E, Ziegfeld, S Knight, VM,
Korehbandi, P, Parnell, D, Klotz, P 2006 The health-related quality
of life of children with an extremity fracture: A one-year follow-up study
Journal of Pediatric Orthopedics, 26, 157-163
Pirpiris, M, Gates, PE, McCarthy, JJ, DAstous, J, Tylkowksi, C,
Sanders, JO, Dorey, FJ, Ostendorff, S, Robles, G, Caron, C,
Otsuka, NY 2006 Function and well-being in ambulatory children with
cerebral palsy Journal of Pediatric
Orthopaedics, 26, 119-124
Youssef, NN, Murphy, TG, Langseder, AL, Rosh, JR 2006 Quality
of life for children with functional abdominal pain: A comparison study of
patients and parents perceptions Pediatrics, 117, 54-59
Zeller, MH, Modi, AC 2006 Predictors of health-related quality of
life in obese youth Obesity Research, 14, 122-130
Parekh, AD, Trusler, LA, Pietsch, JB, Byrne, DW, DeMarco, RT,
Pope, JC, Adams, MC, Deshpande, JK, Brock, JW 2006
Prospective, longitudinal evaluation of health related quality of life in
the pediatric spina bifida population undergoing reconstructive urological
surgery Journal of Urology, 176, 1878-1882
Riddle, R, Ryser, CN, Morton, AA, Sampson, JD, Browne, RH, Punaro,
MG, Gatchel, RJ 2006 The impact on health-related quality of life
from non-steriodal anti-inflammatory drugs, methotrexate, or steroids in
treatment for juvenile idiopathic arthritis Journal of Pediatric
Psychology, 31, 262-271
Wysocki, T and The Diabetes Research in Children Network Study Group
2006 Psychological aspects of continuous glucose monitoring in pediatric
type 1 diabetes Pediatric Diabetes, 7, 32-38
Kolotkin, RL,
Zeller, M, Modi, AC et al 2006 Assessing weight-
related quality of life in adolescents Obesity, 14, 448-457
Pinhas-Hamiel, O, Singer, S, Pilpel, N, Fradkin, A, Modan, D,
Reichman, B 2006 Health-related quality of life among children and
adolescents: Associations with obesity International Journal of Obesity,
30, 267-272
Slomine, BS, McCarthy, ML, Ding, R, Mackenzie, EJ, Jaffe, KM,
Aitken, ME, Durbin, DR, Christensen, JR, Dorsch, AM, Paidas, CN
2006 Health care utilization and needs after pediatric traumatic brain
injury Pediatrics,
Rudolf, M, Christie, D, McElhone, S, Sahota, P, Dixey, R, Walker, J,
Wellings, C 2006 WATCH IT: A community based programme for obese
children and adolescents Archives of Disease in Childhood, 91, 736-739
Grilli L, Feldman, DE, Majnemer, A, Couture, M, Azoulay, L, Swaine,
B 2006 Associations between a functional independence measure WeeFIM
and the Pediatric Quality of Life Inventory PedsQL 40 in young children
with physical disabilities Quality of Life Research, 15, 1023-1031
James, MA, Bagley, AM, Brasington, K, Lutz, C, McConnell, S,
Molitor, F 2006 Impact of prostheses on function and
quality of life
for children with unilateral congenital below-the-elbow deficiency Journal
of Bone and Joint Surgery, 88, 2356-2365
Lau, KM, Chow, SM, Lo, SK 2006 Parents perception of the
quality of life of preschool children at risk or having developmental
disabilities Quality of Life Research,
Ismail, A, Campbell, MJ, Mohd Ibrahim, H, Jones, GL 2006 Health-
related quality of life in Malaysian children with thalassemia Health and
Quality of Life Outcomes, 41:39
Favreau, A, Legendre, A, Bergoend, E et al 2006 Quality of life of
patients with total cavopulmonary anastomosis Arch Mal Coeur Vaiss, 99,
463-469
Reinfjell, T, Diseth, TH, Veenstra, M, Vikan, A 2006 Measuring
health-related quality of life in young adolescents: Reliability and
validity in the Norwegian version of the Pediatric Quality of Life
Inventory 40 PedsQL Generic Core Scales Health and Quality of Life
Outcomes, 4:61
Svavarsdottir, EK Orlygsdottir, B 2006 Health-related quality of
life in Icelandic school children Scandinavian Journal of Caring Sciences,
20, 209-215
Svavarsdottir, EK Orlygsdottir, B 2006 Comparison of health-related
quality of
life among 10- to 12-year-old children with chronic illnesses
and health children: The parents perceptive Journal of School Nursing,
22, 178-185
Stern, M, Mazzeo, SE, Porter, J, Gerke, C, Bryan, D, Laver, J
2006 Self-esteem, teasing and quality of life: African American
adolescent girls participating in a family-based pediatric overweight
intervention Journal of Clinical Psychology in Medical Settings, 13, 217-
228
Pohl, JF, Anding, J, Wong, W, Grimes, R, Varni, JW et al 2006
Pediatric obesity in Texas: Does the Texas Public School Nutrition Policy
affect child nutrition? Texas Medicine, 102, 47-57
McKenna, AM Keating, LE, Vigneux, A, Stevens, S, Williams, A,
Geary, DF 2006 Quality of life in children with chronic kidney
disease: Patient and caregiver assessments Nephrology, Dialysis, and
Transplant,
Young, NL, Bradley, CS, Wakefield, CD, Barnard, D, Blanchette, VS,
McCusker, PJ 2006 How well does the Canadian Haemophilia Outcomes-
Kids Life Assessment Tool CHO-KLAT measure the quality of life of boys
with haemophilia? Pediatric Blood and Cancer, 47, 305-311
Johnson, P, Thomas-Stonell, N, Rumney, P,
Oddson, B 2006 Long-term
outcomes of pediatric acquired brain injury Brain and Cognition, 60, 205-
206
Ungar, WJ, Mirabelli, C, Cousins, M, Boydell, KM 2006 A
qualitative analysis of a dyad approach to health-related quality of life
measurement in children with asthma Social Science and Medicine, 63, 2354-
2366
Goyal, A, Williams, JM, Kenny, SE, Lwin, R, Baillie, CT, Lamont,
GL, Turnock, RR 2006 Functional outcome and quality of life in
anorectal malformations Journal of Pediatric Surgery, 41, 318-322
Hicks, CL, von Baeyer, C L, McGrath, PJ 2006 Online
psychological treatment of pediatric recurrent pain: A randomized
evaluation Journal of Pediatric Psychology, 31, 724-736
McCarthy, ML, MacKenzie, EJ, Durbin, DR, Aitken, ME, Jaffe, KM,
Paidas, CN et al 2005 The Pediatric Quality of Life Inventory: An
evaluation of its reliability and validity for children with traumatic
brain injury Archives of Physical Medicine and Rehabilitation, 86, 1901-
1909
Mistry, R, Stevens, MW, Gorelick, MH 2005 Validity and
responsiveness of the PedsQL 40 for emergency department febrile illness
Pediatric Academic
Societies, 57, 777
Bhat, SR, Goodwin, TL, Burwinkle, TM, Lansdale, M F, Dahl, GV,
Huhn, SL, Gibbs, IC, Donaldson, SS, Rosenblum, RK, Varni, JW,
Fisher, PG 2005 Profile of daily life in children with brain tumors:
An assessment of health-related quality of life Journal of Clinical
Oncology, 23, 5493-5500
Varni, JW, Burwinkle, TM, Sherman, SA, Hanna, K, Berrin, SJ,
Malcarne, VL, Chambers, HG 2005 Health-related quality of life of
children and adolescents with cerebral palsy: Hearing the voices of the
children Developmental Medicine and Child Neurology, 47, 592-597
Williams, J, Wake, M, Hesketh, K, Maher, E, Waters, E 2005 Health-
related quality of life of overweight and obese children JAMA Journal of
the American Medical Association, 293, 70-76
Wigal, SB, McGough, JJ, McCracken, JT, Biederman, J et al 2005 A
laboratory school comparison of mixed amphetamine salts extended release
Adderall XR and Atomoxetine Strattera in school-aged children with
Attention Deficit/Hyperactivity Disorder Journal of Attention Disorders,
9, 275-289
Mangione-Smith, R, Schonlau, M, Chan, KS, Keesey, J, Rosen, M, Louis,
TA, Keeler, E 2005 Measuring
the effectiveness of a collaborative
for quality improvement in pediatric asthma care: Does implementing the
chronic care model improve processes and outcomes of care? Ambulatory
Pediatrics, 5, 75-82
Hinds, RS, Hockenberry, M, Feusner, J, Hord, JD, Rackoff, W,
Rozzouk, BJ 2005 Hemoglobin response and improvements in quality of
life in anemic children with cancer receiving myelosuppressive
chemotherapy Journal of Supportive Oncology, 3, Suppl 4, 10-11
Bastiaansen, D, Koot, HM, Ferdinand, RF in press Psychopathology
in children: Improvement of quality of life without psychiatric symptom
reduction? European Child Adolescent Psychiatry
Bastiaansen, D, Koot, HM, Ferdinand, RF 2005 Determinants of
quality of life in children with psychiatric disorders Quality of Life
Research, 14, 1599-1612
Sawyer, MG, Carbone, JA, Whitham, JN, Roberton, DM, Taplin, JE,
Varni, JW, Baghurst, PA 2005 The relationship between health-
related quality of life, pain, and coping strategies in juvenile arthritis:
A one year prospective study Quality of Life Research, 14, 1585-1598
Chan, KS, Keller, E, Schonlau, M, Rosen, M,
Mangione-Smith, R
2005 How do ethnicity and primary language spoken at home affect
management practices and outcomes in children and adolescents with asthma?
Archives of Pediatrics and Adolescent Medicine, 159, 283-289
Upton, P, Eiser, C, Cheung, I, Hutchings, HA, Jenney, M, Maddocks,
A, Russell, IT, Williams, JG 2005 Measurement properties of the
UK-English version of the Pediatric Quality of Life Inventory 40 PedsQL
Generic Core Scales Health and Quality of Life Outcomes, 3, 22:1-7
Chan, LFP, Chow, SMK, Lo, SK 2005 Preliminary validation of
the Chinese version of the Pediatric Quality of Life Inventory
International Journal of Rehabilitation Research, 28, 219-227
Powell, M, Seid, M, Szer, IS 2005 Efficacy of custom foot
orthotics in improving pain and functional status in children with juvenile
idiopathic arthritis: A randomized trial Journal of Rheumatology, 32, 943-
950
Brunner, HI, Johnson, AL, Barron, AC, Passo, MH, Griffin, TA,
Graham, TB, Lovell, DJ 2005 Gastrointestinal symptoms and their
association with health-related quality of life of children with juvenile
rheumatoid arthritis: Validation of
a gastrointestinal symptom
questionnaire Journal of Clinical Rheumatology, 11, 194-204
Youssef, NN Langseder, AL, Verga, BJ, Mones, RL, Rosh, JR
2005 Chronic childhood constipation is associated with impaired quality
of life: A case-controlled study Journal of Pediatric Gastroenterology and
Nutrition, 41, 56-60
Varni, JW, Burwinkle, TM, Lane, MM 2005 Health-related quality
of life measurement in pediatric clinical practice: An appraisal and
precept for future research and application Health and Quality of Life
Outcomes, 3:34, 1-9
Seid, M, Yu, H, Lotstein, D, Varni, JW 2005 Using health-related
quality of life to predict and manage pediatric health care Expert Review
of Pharmacoeconomics and Outcomes Research, 5, 489-498
Eiser, C, Davies, H, Jenney, M, Stride, C, Glaser, A 2005 HRQOL
implications of treatment with dexamethasone for children with acute
lymphoblastic leukemia ALL Pediatric Blood Cancer
Eiser, C, Vance, YH, Glaser, A, Glavin, H, Home, B, Picton, S,
Stone, A, Butler, G 2005 Growth hormone treatment and quality of
life among survivors of childhood cancer Hormone Research, 63, 300-304
Eiser, C, Eiser,
JR, Stride, CB 2005 Quality of life in children
newly diagnosed with cancer and their mothers Health and Quality of Life
Outcome, 3:29, 1-5
Pongwilairat, K, Louthrenno, O, Charnsil, C, Witoonchart, C 2005
Quality of life of children with attention-deficit/hyperactivity disorder
Journal of the Medical Association of Thailand, 88, 1062-1066
Rose, BL, Mansour, M, Kohake, K 2005 Building a partnership to
evaluate school-linked health services: The Cincinnati School Health
Demonstration Project Journal of School Health, 75, 363-369
Chase, P Diabetes Research in Children Network DirecNet Study Group
2005 A randomized multicenter trial comparing the GlucoWatch Biographer
with standard glucose monitoring in children with Type 1 diabetes Diabetes
Care, 28, 1101-1106
Schwimmer, JB, Middleton, MS, Deutsch, R, Lavine, JE 2005 A
phase 2 trial of metformin as a treatment for non-diabetic pediatric non-
alcoholic steatohepatitis Alimentary Pharmacology Therapeutics, 21, 871-
879
Casey, PH, Szeto, KL, Robbins, JM, Stuff, JE, Connell, C, Gossett,
JM, Simpson, PM 2005 Child health-related quality of life and
household food security Archives
of Pediatric and Adolescent Medicine,
159, 51-56
Moorthy, LN, Harrison, MJ, Peterson, M, Onel, KB Lehman, TJ
2005 Relationship of quality of life and physical function measures with
disease activity in children with systematic lupus erythematosus Lupus,
14, 280-287
Soo, I, Mah, JK, Barlow, K, Hamiwka, L, Wirrell, E 2005 Use of
complementary and alternative medical therapies in a pediatric neurology
clinic Canadian Journal of Neurological Sciences, 32, 524-528
Upton, P, Maddocks, A, Eiser, C, Barnes, PM, Williams, J 2005
Development of a measure of the health-related quality of life of children
in public care Child: Care, Health Development, 31, 409-415
Sheppard, L, Eiser, C, Kingston, J 2005 Mothers perceptions of
childrens quality of life following early diagnosis and treatment for
retinoblastoma Rb Child: Care, Health Development, 31, 137-142
Talarska, D 2005 Quality of life in healthy children and in children
with tension headaches - A comparative analysis Rocz Akad Med Bialymst,
50 Suppl 1, 126-128
Alpert, SA, Cheng, EY, Zebold, KF, Kaplan, WE 2005 Clean
intermittent catherization in genitally sensate
children: Patient
experience and health related quality of life Journal of Urology, 174,
1616-1619
Lindman, JP, Lewis, LS, Accortt, N, Wiatrak, BJ 2005 Use of the
Pediatric Quality of Life Inventory to assess the health-related quality of
life in children with recurrent respiratory papillomatosis Ann Otol
Rhinol Laryngol, 114, 499-503
Seid, M, Varni, JW 2005 Measuring primary care for children of
Latino farmworkers: Reliability and validity of the Parents Perceptions of
Primary Care measure P3C Maternal and Child Health Journal, 9, 49-57
Eiser, C, Eiser, JR, Mayhew, AG, Gibson, AT 2005 Parenting the
premature infant: Balancing vulnerability and quality of life Journal of
Child Psychology and Psychiatry,
Biar, JM, Johnson, MP, Carr, MC, Wilson, RD, Hedrick, HL,
Pavlock, C, Adzick, NS 2005 Long-term outcomes in children treated
by prenatal vesicoamniotic shunting for lower urinary tract obstruction
Obstetrics and Gynecology, 106, 503-508
Packman, W, Greenhalgh, J, Chesterman, B et al 2005 Siblings of
pediatric cancer patients: The quantitative and qualitative nature of
quality of life Journal of Psychosocial Oncology,
23, 87-108
Ribi, K, Relly, C, Landolt, MA 2005 Outcome of medulloblastoma in
children: Long-term complications and quality of life Neuropediatrics, 36,
357-365
Meeske, K, Katz, ER, Palmer, SN, Burwinkle, TM, Varni, JW
2004 Parent proxy-reported health-related quality of life and fatigue in
pediatric patients diagnosed with brain tumors and acute lymphoblastic
leukemia Cancer, 101, 2116-2125
Seid, M, Varni, JW, Segall, D, Kurtin, PS 2004 Health-related
quality of life as a predictor of pediatric healthcare costs: A two-year
prospective cohort analysis Health and Quality of Life Outcomes, 2 48, 1-
10
Sallee, FR, Ambrosini, PJ, Lopez, FA, Shi, L, Michaels, MA
2004 Health-related quality of life and treatment satisfaction and
preference in a community assessment study of extended-release mixed
amphetamine salts for children with attention-deficit/hyperactivity
disorder Journal of Outcomes Research, 8, 27-49
Razzouk, BI, Hockenberry, M, Hinds, PS, et al 2004 Influence of
hemoglobin response to epoetin alfa on quality of life in anemic children
with cancer receiving myelosuppressive chemotherapy Program and
abstracts
of the 46th Annual Meeting of the American Society of Hematology; December
4-7, San Diego, California, Abstract 2218
Youssef, NN, Rosh, JR, Loughran, M, Schuckalo, SG, Cotter, AN,
Verga, BG, Mones, RL 2004 Treatment of functional abdominal pain
in childhood with cognitive behavioral strategies Journal of Pediatric
Gastroenterology and Nutrition, 39, 192-196
Varni, JW, Sherman, SA, Burwinkle, TM, Dickinson, PE, Dixon, P
2004 The PedsQL Family Impact Module: Preliminary reliability and
validity Health and Quality of Life Outcomes, 2 55, 1-6
Varni, JW, Burwinkle, TM, Katz, ER 2004 The PedsQL in pediatric
cancer pain A prospective longitudinal analysis of pain and emotional
distress Journal of Developmental and Behavioral Pediatrics, 25, 239-246
Bastiaansen, D, Koot, HM, Bongers, IL, Varni, JW, Verhulst, FC
2004 Measuring quality of life in children referred for psychiatric
problems: Psychometric properties of the PedsQL 40 Generic Core Scales
Quality of Life Research, 13, 489-495
Bastiaansen, D, Koot, HM, Ferdinand, RF, Verhulst, FC 2004
Quality of life in children with psychiatric disorders: Self, parent,
and
clinician report Journal of the American Academy of Child and Adolescent
Psychiatry, 43, 221-230
Felder-Puig, R, Frey, E, Proksch, K, Varni, JW, Gadner, H, Topf, R
2004 Validation of the German version of the Pediatric Quality of Life
Inventory PedsQL in childhood cancer patients off treatment and
children with epilepsy Quality of Life Research, 13, 223-234
Varni, JW, Burwinkle, TM, Dickinson, P, Sherman, SA, Dixon, P,
Ervice, JA, Leyden, PA Sadler, BL 2004 Evaluation of the built
environment at a Childrens Convalescent Hospital: Development of the
Pediatric Quality of Life Inventory Parent and Staff Satisfaction Measures
for pediatric health care facilities Journal of Developmental and
Behavioral Pediatrics, 25, 10-25
Crabtree, VM, Varni, JW, Gozal, D 2004 Health-related quality of
life and depressive symptoms in children with suspected sleep-disordered
breathing Sleep, 27, 1131-1138
Poretti, A, Grotzer, MA, Ribi, K, Schonle, E, Boltshauser, E
2004 Outcome of craniopharyngioma in children: Long-term complications
and quality of life Developmental Medicine and Child Neurology, 46, 220-
229
Brunner, HI,
Klein-Gitelman, MS, Miller, MJ, Trombley, M, Baldwin,
N, Kress, A, Johnson, AL, Barron, AC, Griffin, TA, Passo, MH,
Lovell, DJ 2004 Health of children with chronic arthritis:
Relationship of different measures and the quality of parent proxy
reporting Arthritis Care and Research, 51, 763-773
Sawyer, MG, Whitham, JN, Roberton, DM, Taplin, JE, Varni, JW,
Baghurst, PA 2004 The relationship between health-related quality of
life, pain, and coping strategies in juvenile idiopathic arthritis
Rheumatology, 43, 325-330
Powers, SW, Patton, SR, Hommel, KA, Hershey, AD 2004 Quality
of life in pediatric migraine: Characterization of age-related effects
using PedsQL 40 Cephalalgia, 24, 120-127
Friefeld, S, Yeboah, O, Jones, JE, DeVeber, G 2004 Health-related
quality of life and its relationship to neurological outcome in child
survivors of stroke CNS Spectrums, 9, 465-475
Packman, W, Fine, J, Chesterman, B, vanZutphen, K, Golan, R, Amylon,
MD 2004 Camp Okizu: Preliminary investigation of a psychological
intervention for siblings of pediatric cancer patients Childrens Health
Care, 33, 201-216
De Clercq, B, De
Fruyt, F, Koot, HM, Benoit, Y 2004 Quality of
life in children surviving cancer: A personality and multi-informant
perspective Journal of Pediatric Psychology, 29, 579-590
Windle, M, Grunbaum, A, Elliott, M, Tortolero, SR, Berry, S,
Gilliland, J, Kanouse, DE, Parcel, GS, Wallander, J, Kelder, S,
Collins, J, Kolbe, L, Schuster, M 2004 Healthy Passages: A
multilevel, multimethod longitudinal study of adolescent health American
Journal of Preventive Medicine, 27, 164-172
Eiser, C, Eiser, JR, Greco, V 2004 Surviving childhood cancer:
Quality of life and parental regulatory focus Personality and Social
Psychology Bulletin, 30, 123-133
Curran, AL, Miller, HE, McCarter, RJ et al 2004 Health related
quality of life and its determinants in head injured children 1 and 6
months after injury Archives of Disease in Childhood, 89, A21
Seid, M, Sobo, EJ, Gelhard, LR, Varni, JW 2004 Parents reports
of barriers to care for children with special health care needs:
Development and validation of the Barriers to Care Questionnaire
Ambulatory Pediatrics, 4, 323-331
Sawyer, MG, Reynolds, KE, Couper, JJ,
French, DJ, Kennedy, D,
Martin, J, Staugas, R, Ziaian, T, Baghurst, PA 2004 Health-
related quality of life of children and adolescents with chronic illness: A
two year prospective study Quality of Life Research, 13, 1309-1319
Schwimmer, JB, Burwinkle, TM, Varni, JW 2003 Health-related
quality of life of severely obese children and adolescents JAMA Journal
of the American Medical Association, 289, 1813-1819
Powers, SW, Patton, SR, Hommel, KA, Hershey, AD 2003 Quality
of life in childhood migraines: Clinical impact and comparison to other
chronic illnesses Pediatrics, 112, e1-e5
Mansour, ME, Kotagal, U, Rose, B, Ho, M, Brewer, D, Roy-Chaudhury,
A, Hornung, RW, Wade, TJ, DeWitt, TG 2003 Health-related
quality of life in urban elementary schoolchildren Pediatrics, 111, 1372-
1381
Hallstrand, TS, Curtis, JR, Aitken, ML, Sullivan, SD 2003
Quality of life in adolescents with mild asthma Pediatric Pulmonology,
36, 536-543
Bucuvalas, JC, Britto, M, Krug, S, Ryckman, FC, Atherton, H, Alonso,
MP, Balistreri, WF, Kotagal, U 2003 Health-related quality of
life in pediatric liver transplant recipients: A single-center study
Liver
Transplantation, 9, 62-71
Robinson, RF, Nahata, MC, Hayes, JR, Rennebohm, R Higgins, G
2003 Quality of life measurements in juvenile rheumatoid arthritis
patients treated with Etanercept Clinical Drug Investigation, 23, 511-518
Eiser, C, Vance, YH, Horne, B, Glaser, A, Galvin, H 2003 The
value of the PedsQL in assessing quality of life in survivors of childhood
cancer Child: Care, Health Development, 29, 95-102
Laffel, LMB, Vangsness, L, Connell, A, Goebel-Fabbri, A, Butler, D,
Anderson, BJ 2003 Impact of ambulatory, family-focused teamwork
intervention on glycemic control in youth with Type 1 diabetes Journal of
Pediatrics, 142, 409-416
Laffel, LMB, Connell, A, Vangsness, L, Goebel-Fabbri, A, Mansfield,
A, Anderson BJ 2003 General quality of life in youth with Type 1
diabetes: Relationship to patient management and diabetes-specific family
conflict Diabetes Care, 26, 3067-3073
Iannaccone, ST, Hynan, LS 2003 Reliability of 4 outcome measures
in pediatric spinal muscular atrophy Archives of Neurology, 60, 1130-1136
Curran, AL, Miller, H, McCarter, R, Sharples, PM, the Kids Head
Injury Study Group 2003 Measuring
quality of life after traumatic brain
injury in children: How does the Health Utilities Index HUI compare to
the Pediatric Quality of Life measure PedsQL? Archives of Disease in
Childhood, 88, A24
Burdette, HL, Whitaker, RC, Harvey-Berino, J, Kahn, RS 2003
Depressive symptoms in low-income mothers and emotional and social
functioning in their preschool children Ambulatory Pediatrics, 3, 288-294
Iannaccone, ST 2002 Outcome measures for pediatric spinal muscular
atrophy Archives of Neurology, 59, 1445-1450
Seid, M, Varni, JW, Olson Bermudez, L, Zivkovic M, Davodi Far, M,
Nelson, M, Kurtin, P S 2001 Parents perceptions of primary care:
Measuring parents experiences of pediatric primary care quality
Pediatrics, 108, 264-270
PedsQL Pediatric Pain Questionnaire
PedsQL Present Functioning Visual Analogue Scales
Pediatric Pain Coping Inventory
Peer Reviewed Publications
Vetter, TR 2008 A clinical profile of a cohort of patients referred to
an anesthesiology-based pediatric chronic pain medicine program Anesthesia
and Analgesia, 106,
786-794
Eisen, SL, Ulrich, RS, Shepley, MM, Varni, JW, Sherman, S
2008 The stress-reducing effects of art in pediatric health care: Art
preferences of healthy children and hospitalized children Journal of Child
Health Care, 12, 173-190
Barakat, LP, Daniel, LC, Patterson, CA, Dampier, C 2008 Quality
of life among adolescents with sickle cell disease: Mediation of pain by
internalizing symptoms and parenting stress Health and Quality of Life
Outcomes, 6:60
Simons, LE, Claar, RL, Logan, DL 2008 Chronic pain in
adolescence: Parental responses, adolescent coping, and their impact on
adolescents pain behaviors Journal of Pediatric Psychology, 33, 894-904
Sherman, SA, Eisen, S, Burwinkle, TM, Varni, JW 2006 The PedsQL
Present Functioning Visual Analogue Scales: Preliminary reliability and
validity Health and Quality of Life Outcomes, 4:75, 1-10
Degotardi, PJ, Klass, ES, Rosenberg, BS, Fox, DG, Gallelli,k KA,
Gottlieb, BS 2006 Development and evaluation of a cognitive-
behavioral intervention for juvenile fibromyalgia Journal of Pediatric
Psychology, 31, 714-723
Oddson, BE, Clancy, CA, McGrath, PJ 2006 The role of
pain in
reduced quality of life and depressive symptomology in children with spina
bifida Clinical Journal of Pain, 22, 784-789
Sobo, EJ, Eng, B Kassity-Krich, N 2006 Canine visitation pet
therapy: Pilot data on decreases in child pain perception Journal of
Holistic Nursing, 24, 51-57
Engel, JM, Jensen, MP, Schwartz, L 2006 Coping with chronic pain
associated with cerebral palsy Occupational Therapy International, 13, 224-
233
Sawyer, MG, Carbone, JA, Whitham, JN, Roberton, DM, Taplin, JE,
Varni, JW, Baghurst, PA 2005 The relationship between health-
related quality of life, pain, and coping strategies in juvenile arthritis:
A one year prospective study Quality of Life Research, 14, 1585-1598
Powell, M, Seid, M, Szer, IS 2005 Efficacy of custom foot
orthotics in improving pain and functional status in children with juvenile
idiopathic arthritis: A randomized trial Journal of Rheumatology, 32, 943-
950
Clancy, CA, McGrath, PJ, Oddson, BE 2005 Pain in children and
adolescents with spina bifida Developmental Medicine and Child Neurology,
47, 27-34
Konijnenberg, AY et al 2005 Children with unexplained chronic
pain:
Substantial impairment in everyday life Archives of Disease in Childhood,
90, 680-686
Sawyer, MG, Whitham, JN, Roberton, DM, Taplin, JE, Varni, JW,
Baghurst, PA 2004 The relationship between health-related quality of
life, pain, and coping strategies in juvenile idiopathic arthritis
Rheumatology, 43, 325-330
Varni, JW, Burwinkle, TM, Katz, ER 2004 The PedsQL in pediatric
cancer pain A prospective longitudinal analysis of pain and emotional
distress Journal of Developmental and Behavioral Pediatrics, 25, 239-246
Sandstrom, MJ and Schanberg, LE 2004 Peer rejection, social
behavior, and psychological adjustment in children with juvenile rheumatic
disease Journal of Pediatric Psychology, 29, 29-34
Rapoff, MA 2003 Pediatric measures of pain: The Pain Behavior
Observation Method, Pain Coping Questionnaire PCQ, and Pediatric Pain
Questionnaire Arthritis Care Research, S5, S90-S95
Eccleston, C et al 2003 Chronic pain in adolescents: Evaluation of a
programme of interdisciplinary cognitive behaviour therapy Archives of
Disease in Childhood, 88, 881-885
Foster, RL Varni, JW 2002 Measuring the quality of
childrens
postoperative pain management: Initial validation of the child/parent Total
Quality Pain Management TQPM instruments Journal of Pain and Symptom
Management, 23, 201-210
Chambliss, CR et al 2002 The assessment and management of chronic
pain in children Pediatric Drugs, 4, 736-746
Schanberg, LE, Anthony, KK, Gil, KM et al 2001 Family pain
history predicts child health status in children with chronic rheumatic
disease Pediatrics, 1083/e47, 1-7
Graumlich, SE, Powers, SW, Byars, KC et al 2001 Multidimensional
assessment of pain in pediatric sickle cell disease Journal of Pediatric
Psychology, 26, 203-214
Varni, JW, Rapoff, MA, Waldron, SA, Gragg, RA, Bernstein, BH,
Lindsley, CB 1996 Chronic pain and emotional distress in children and
adolescents Journal of Developmental and Behavioral Pediatrics, 17, 154-
161
Thastum, M, Zachariae, R, Scholer, M, Herlin, T 1999 A Danish
adaption of the pain coping questionnaire for children: Preliminary data
concerning reliability and validity Acta Paediatricia, 88, 132-138
Varni, JW, Waldron, SA, Gragg, RA, Rapoff, MA, Bernstein, BH,
Lindsley, CB, Newcomb, MD 1996 Development of
the Waldron/Varni
Pediatric Pain Coping Inventory Pain, 67, 141-150
Varni, JW, Rapoff, MA, Waldron, SA, Gragg, RA, Bernstein, BH,
Lindsley, CB 1996 Effects of perceived stress on pediatric chronic
pain Journal of Behavioral Medicine, 19, 515-528
Gragg, RA, Rapoff, MA, Danovsky, MB, Lindsley, CB, Varni, JW,
Waldron, SA, Bernstein, BH 1996 Assessing chronic musculoskeletal
pain associated with rheumatic disease: Further validation of the Pediatric
Pain Questionnaire Journal of Pediatric Psychology, 21, 237-250
Benestad, B, Vinje, O, Veierod, MB, Vandvik, IH 1996
Quantitative and qualitative assessments of pain in children with juvenile
chronic arthritis based on the Norwegian version of the Pediatric Pain
Questionnaire Scandinavian Journal of Rheumatology, 25, 293-299
Walco, GA, Varni, JW, Ilowite, NT 1992 Cognitive-behavioral pain
management in children with juvenile rheumatoid arthritis Pediatrics, 89,
1075-1079
Varni, JW 1992 Evaluation and management of pain in children with
juvenile rheumatoid arthritis Journal of Rheumatology, 19, 32-35
Ilowite, NT, Walco, GA, Pochaczevsky, R 1992 Assessment of pain
in patients
with juvenile rheumatoid arthritis: Relation between pain
intensity and degree of joint inflammation Annals of Rheumatic Diseases,
51, 343-346
Varni, JW, Bernstein, BH 1991 Evaluation and management of pain in
children with rheumatic diseases Rheumatic Disease Clinics of North
America, 17, 985-1000
Walco, GA Dampier, CD 1990 Pain in children and adolescents with
sickle cell disease: A descriptive study Journal of Pediatric Psychology,
15, 643-658
Varni, JW, Wilcox, KT, Hanson, V Brik, R 1988 Chronic
musculoskeletal pain and functional status in juvenile rheumatoid
arthritis: An empirical model Pain, 32, 1-7
Thompson, KL, Varni, JW, Hanson, V 1987 Comprehensive assessment
of pain in juvenile rheumatoid arthritis: An empirical model Journal of
Pediatric Psychology, 12, 241-255
Varni, JW, Thompson, KL, Hanson, V 1987 The Varni/Thompson
Pediatric Pain Questionnaire: I Chronic musculoskeletal pain in juvenile
rheumatoid arthritis Pain, 28, 27-38
Source:abn.state.al.us
