Diabetes. Association (ADA) ATTN: National Call Center, 1701 North Beauregard Street, for Diabetes & Children/Families. RI Local & National Resources …
RI Local National Resources for Diabetes Children/Families
Diabetes Associations Web Sites
Agency American Diabetes Association ADA
Contact Info ATTN: National Call Center, 1701 North Beauregard Street, Alexandria, VA 22311 1-800-DIABETES M-F 8:30am-8:00pm EST E-mail: AskADA@diabetesorg Web: http://wwwdiabetesorg PO Box 1525, Fall River, MA 02722 508672-5671, Fax: 508672-4546 E-mail: daisema@earthlinknet Web: http://wwwdiabetesmaorg/
Description Offers a wide variety of general information about the diagnosis of all types of diabetes, including juvenile diabetes Provides education, information, referral, motivation and support for people with diabetes and those who care for them Provides information on a multitude of topics, along with valuable links and information targeted especially for school nurses Educates and supports individuals families affected by diabetes General info on prevention and control of diabetes, including nutrition info, diabetes children, tools resources The Joslin Clinics treat patients with a broad range of endocrine and other related diseases
Diabetes Association Inc
School Nurse Site
Web: http://wwwschoolnursecom
Diabetes Foundation of Rhode
Island Diabetes Prevention Control Program DPCP, RI Dept of Health Joslin Diabetes Centers
209 Cottage St Pawtucket, RI 02860 401725-7800, Fax: 401725-8833 3 Capitol Hill, Room 408, Providence, RI 02908 401222-3442, Fax: 401222-4415 Web: wwwhealthrigov/disease/diabetes/homehtm
Joslin Clinic, 1 Joslin Place, Boston, MA 02215 617732-2400 Joslin Clinic Falmouth, MA 508548-1944 Deaconess - Nashoba Valley Med Center Ayer, MA 978784-9534 Deaconess Glover Needham, MA 781453-5231
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Wellpoint
Web:
http://wwwwellpointcom/commitments/healthy_parentingasp
This site offers a guide to parents who are trying to help their overweight children slim down The guide provides strategies for engaging the entire family in healthful eating habits and regular physical activity Offers a wide variety of general info and links with current publications on diabetes, with a focus on the kidneys Offers a wide variety of general info on prevention control of diabetes, along with links to different diabetes organizations Site contains questions and facts about the diagnosis of diabetes offered by the CDC
National Institute of Diabetes Digestive
Kidney Diseases NIDDK National Diabetes Education Program
Web: http://wwwniddknihgov/health/diabetes/diabeteshtm
Web: http://wwwndepnihgov/diabetes/diabeteshtm
Center for Disease Control Preventions CDC Diabetic Program: Frequently Asked Qs Juvenile Diabetes Research Foundation RI Chapter Children with Diabetes
Web: http://wwwcdcgov/diabetes/faqshtm
2374 Post Road Suite 203, Warwick, RI 02886 401738-9898 Fax: 401738-7162 E-mail:rhodeisland@jdrforg Web: http://wwwjdrforg Web: http://wwwchildrenwithdiabetescom
The mission of this organization is to find a cure for diabetes and its complications through the support of research This site offers a list of concerns that are important to raising a child w/ diabetes It offers parents advice support An informational web site in kids terms
Kids Learn About Diabetes
Web: http://wwwKidsLearnAboutDiabetesorg
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Starbright Foundation
Web: wwwstarbrightorg
FREE CD-ROM game is offered for children with diabetes
Foundation is dedicated to the development of projects that empower seriously ill children to combat the medical emotional challenges Wide variety of topics dealing with
juvenile diabetes, including diagnosis, treatment, and research Site offers information about the signs and symptoms of Type 1 diabetes including what happens to the body A wide variety of topics dealing with juvenile diabetes Including diagnosis, treatment, and research
MEDLINEplus: Juvenile Diabetes
Web: http://wwwnlmnihgov/medlineplus/juvenilediabeteshtml
Diabetes ChannelLifecliniccom
Web: http://wwwlifecliniccom/focus/diabetes/about_itasp
Type 1 Diabetes Overview
Web: http://wwwhealthwiseorg/kbase/topic/major/HW34303/descriphtm
Camps Support Groups RI Regional The Diabetes Foundation of Rhode Island DFRI
The support groups that DFRI offers meet every other week during the school year Camp Surefire is an overnight camp, held during the month of July Goals for children include: to gain a better understanding of their diabetes, develop confidence, social skills, communication, independence, have fun Camp sunshines focus is on teaching good control of the childs diabetes, while having a good time Camp Rainbow offers many different activities: athletics, field sports, skits talent shows, among many others Both camps are located in Rochester, NY For more information about
either of these camps contact: The Rochester Chapter of the ADA at: Contains detailed list of camps sponsored by ADA Refer to the Find a Camp link on the site map for specific descriptions contact info Web: http://wwwdiabetesorg For more information about these programs contact DFRI at: 209 Cottage St Pawtucket, RI 02860 401725-7800, Fax: 401725-8833
Support Groups Camp Surefire
Camp Sunshine The American Diabetes Association
Camp Rainbow Day Camp
585458-3040; Fax: 585458-3138
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Camp Carefree
Camp Carefree is a camp for young people with diabetes and is located in New Durham, NH A small, informal camp that provides a recreational camping experience For more information about this camp contact:
Joan Clifford at 800-676-4065 x3606 The Diabetes Association, Inc Youth Exercise/Sports and Support Group YESS Teen Support Group Parent Support Group Camp Kyle T Woodruff
YESS is a support group that reaches children between the ages of 5 and 12, in the North Dartmouth Community of MA The program consists of an hour activity and then an hour social support and education group Teen support group reaches diabetic teens ages 13-18
Parent Support group is an information support group for the parents of the children in the YESS program, and meets during the childrens time Camp runs during the month of July at the Fall River Rod and Gun Club on the South Watuppa Pond in Westport, MA This camp tailors to children with diabetes ages 5-14 The summer camp program is offered in both 1 and 2-week sessions during the summer months for boys, ages 7-16 Wilderness leadership includes different outdoor activities, and has a trained wilderness staff, and healthcare professionals This program is offered to youth ages 15-18 Life after high school prepares young men and women ages, 16-19 for what life has to offer after high school Program offered in Plymouth, MA Youth ages 12-17 can join the Joslin winter camp in Plymouth, MA For more information on these camp programs please visit their web site: http://wwwjoslinharvardedu/ jboston/campshtmloverview OR at: Boys Camp and Co-ed Programs Camp Office Joslin Diabetes Center One Joslin Place Boston, MA 02215 Phone: 617732-2455 E-mail: camp@joslinharvardedu For more information please contact the RI Chapter at: 401738-9898 Web: wwwjdrforg\rhodeisland For more information about
these programs you can contact the DAI at:
508672-5671
More specific info can be found on the web: http://homeearthlinknet
Joslin Diabetes Center - The Elliot P Joslin Camps
Summer Camp boys only Wilderness Leadership Program co-ed Life After High School co-ed Winter Camp co-ed
Juvenile Diabetes Research Foundation
Networking Coffee These support groups are primarily for parents with children who are newly Meetings
diagnosed with diabetes They are held in a very relaxed forum, and children are encouraged to come
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Barton Center for Diabetes Education
Camp Clara Barton Barton Co-ed Adventure Camp
These are a few of several programs offered for children with diabetes These camps, along with other programs are held in the later summer months The ages of the people who can attend vary from program to program There are day and over-night camps available Activities offered include: swimming, boating, fishing, arts crafts, dancing, soccer, etc Additional program features include: blood glucose monitoring, insulin administration, meal plans, education, and supplies
For more information about these programs contact The
Barton Center for Diabetes Education, Inc PO Box 356 68 Clara Barton Rd North Oxford, MA 01537 508987-2056 e-mail: cbdiabetes@aolcom Web: wwwchildrenwithdiabetes com/camps
ADDITIONAL SITES
Children with Diabetes
Site is full of information for parents of diabetic children; offers personal stories, humor, and support through email chats Site lists over 100 stories of children w/ diabetes It offers a chance for families to communicate with others that have diabetes Some of the sites have pictures and email addresses to facilitate communication The Pediatric Adolescent Diabetes Research Education foundation provides education support groups for children w/ diabetes, as well as their siblings and parents The site also contains interactive games for children Site offers parents a place to go and get information about raising children w/ diabetes It has information on diabetic camps, a normal diet in the life of a Type 1 diabetic, and concerns about sending the children to school after diagnosis
http://wwwchildrenwithdiab etescom/index_cwdhtm
Children with Diabetes: Kids Voice PADRE
http://childrenwithdiabetesc om/kids/d_02_100htm
http://padrefoundationorg/
Parenting Special
Needs
http://specialchildrenabout com/cs/juvenilediabetes/
Psychosocial Aspects of Type 1 Diabetes
Site offers information on how teens deal with the psychological aspects of diabetes
This is a members-only web page, but sign up is FREE http://endocrinemedscape com/Medscape/CNO/1999/ EASD/EASD09htmlMember
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Care Providers Treatment Hallett Center for Diabetes Endocrinology at RIH Hasbro Childrens Hospital RIH Miriam Hospital New England Medical Center NEMC 268 Rhode Island Hospital
593 Eddy Street [Treat adults with diabetes endocrine disorders] Providence, RI 02903 401444-8344 wwwlifespanorg/services/diabetes/rih/defaulthtm 593 Eddy Street Providence, RI 02903 401444-4000 — Childrens Emergency press 1 Pediatric Endocrine Clinic: 401444-4609 164 Summit Ave Providence, RI 02903
401793-2500 — Emergency press 1
750 Washington Ave Box 268, Boston, MA 02111
617636-5689 — Division of Endocrinology
593 Eddy Street Providence, RI 02903 401444-4000 — Emergency press 2 Endocrine Clinic: 401444-8344 825 Chalkstone Ave Providence, RI 02906 15 La Salle Square Providence, RI 02903
Roger Williams Medical Center Blue Cross /
Blue Shield of Rhode Island Overcoming Juvenile Diabetes with a Little Planning and High-Tech Tools American Association of Diabetic Educators AADE
401456-2000 — Emergency press 1
401831-7300 walk-ins permitted
Site offers information to help teens deal with their diagnosis of diabetes http://wwwfdagov/fdac/features/2000/400_diabhtml The AADE is a multidisciplinary organization representing over 10,000 healthcare professionals who provide diabetes education and care http://wwwaadenetorg/
Research Centers for Disease Control Prevention CDC - Diabetes Diabetes Prevention Control Program, RI Dept of Health
Division of Diabetes Translation at the CDC site contains current data/statistics and national scientific information on type 1 and type 2 diabetes http://wwwcdcgov/diabetes/ General information about the state supported programs Includes links to various topics, tools and resources on type 1 and type 2 diabetes http://wwwhealthrigov/disease/diabetes/homehtm
BMI Body Mass Ind
ex Calculator
Provides automatic calculations for children adult BMIs Site also contains info on nutrition, general and other child disorders Web:
http://wwwkeepkidshealthycom/welcome/bmicalculatorhtml
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Juvenile Diabetes Research Foundation: Research
Site provides information on a wide variety of current research projects that are available for readers Web: http://wwwjdrforg/
International Diabetes Federation
Site is an international foundation that has up-to-date information on current research related to juvenile diabetes and other types of diabetes Web: http://wwwidforg/
Joslin Diabetes Center
Site contains various research material ranging from behavioral and mental health research to vascular cell biology, and everything in between http://wwwjoslinresearchorg/cores/derc_flasp
Diabetes Care
Search engine for articles pertaining to diabetes mellitus; run by ADA http://carediabetesjournalsorg/
Hallett Center for Diabetes Endocrinology RIH
Medical and research practice based out of RI Hospital Site contains links to diabetes facts, groups, diabetes education services, and latest research http://wwwlifespanorg/services/diabetes/rih/defaulthtm
Complications Eyes National Eye Institute
Learn about diabetic retinopathy, its causes, treatment, and prevention Site
includes pictures, diagrams, and information on other vision problems Vision related links to support services, and workshops, and rehabilitation services offered in the Rhode Island area Call for information about RI services for the blind or visually impaired http://wwwneinihgov/health/indexhtm
IN-SIGHT
http://wwwin-sightorg/indexhtml 401941-3322 43 Jefferson Blvd Warwick, RI 02886 401222-2300
State Services for the Blind Visually Impaired Feet Nerves
American Podiatric Medical Association The Foot and Ankle Library Nerve Damage Neuropathy
Statistics, and facts about diabetes and foot health Also links to general foot facts, and finding a podiatrist in your area Site lists all existing links about foot health and general podiatry Site related to all aspects of nerve damage, including what happens to the feet, legs, digestive tract and sexual organs
http://wwwapmaorg/topi cs/diabeteshtm 1-800-ASK-APMA 1-800-275-2762 http://wwwfootandanklec om/podmed/ http://wwwlifescancom/c are/complications/nerves/
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Heart
American Heart Association
Info on heart and cardiovascular disease and their relation to diabetes Includes
links to heart healthy recipes and ways to lower cholesterol Information on importance of exercise, tracking your exercise routine, links to health facts, fitness links and FAQs
wwwamericanheartorg
wwwjustmoveorg
Kidney
National Institute of Diabetes Digestive Kidney Dis NIDDK MedicAlert Foundation
Information about kidney disease and how diabetes increases this risk
wwwniddknihgov/health /diabetes/diabeteshtm
Medical ID Bracelet
Information about how to obtain a medical identification bracelet for emergency medical conditions
wwwmedicalertorg By phone 7 days a week, 24 hours a day: 1-888-633-4298
Nutrition References ADA- Nutrition and Recipes FDA- Food Labels
Links to recipes, general information, exchange lists and information on sweeteners Links to consumer health information, how to use a food label, and specific information on a variety of categories, including irradiation, food allergies, and trans-fatty acids http://wwwdiabetesorg/nutritionand-recipes/nutrition/overviewjsp http://wwwcfsanfdagov/labelhtml
Exercise/Physical Activity References AAHPERD NASPE
American Alliance for Health, Physical Education, Recreation dance AAHPERD promotes high quality programs
in these areas The National Association for Sport Physical Education NASPE develops and supports quality sport and physical activity programs that promote healthy behaviors and individual well-being NASPEs 20,000 members include K-12 physical educators, college and university faculty, researchers, coaches, athletic directors and trainers Organization is dedicated to teaching about maintaining healthy weight throughout life Site includes resources on assessing pediatric obesity, fitness weight management directory, walking 10,000 steps to better health, etc http://wwwaahperdorg/
http://wwwaahperdorg/naspe/
Shape Up America
http://wwwshapeuporg
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Books Diabetes Care for Babies, Toddlers, and Pre-schoolers: A Reassuring Guide Insulin-Dependent Diabetes in Children, Adolescents, and Adults How to become an Expert on your own diabetes Parenting a Child with Diabetes: A Practical, Empathetic Guide to Help You and Your Child Live with Diabetes Growing up with Diabetes: What Children Want Their Parents To Know Living with Juvenile Diabetes: A Practical Guide for Parents and Caregivers 101 Medication Tips for People with Diabetes
Diabetes Mellitus: A Practical Handbook Diabetes for Dummies Diabetes Cookbook for Dummies The Diabetics Book: All Your Questions Answered Diabetes, A Z
By: Jean Betschart 1998 Order online through Diabetes Alliance Bookstore, National Diabetes Alliance ADULT By: Ragnar Hanas 1998 Order online through Amazoncom By: Gloria Loring 1999 Order online through Amazoncom By: Alicia McAuliffe 1998 Order online through Amazoncom By: Victoria Peurrung 2001 Order online through travelreviewbookscom By: Betsy A Carlisle, et al 2000 Order online through Amazoncom By: Sue K Milchovich, et al 1999 Order online through Amazoncom By: Alan L Rubin 1999 Order online through Amazoncom By: Alan L Rubin, et al 2000 Order online through Amazoncom By: June Biermann, et al 1998 Order online through Amazoncom FAMILY
ADULT
ADULT
ADULT
ADULT
ADULT ADULT FAMILY ADULT
By: The American Diabetes Association 1998 Order online through American Diabetes Association ADULT By: Nancy Touchette, PhD 1999 Order online through Amazoncom ADULT By: The American Diabetes Association Order online through storediabetesorg 1997 ADULT
The Diabetes Problem Solver: Quick Answers to Your Questions about
Treatment and Self-Care American Diabetes Association, Complete Guide to Diabetes Johns Hopkins Guide to Diabetes
By: Christopher Saudek, et al 1997 Order online through storediabetesorg By: Richard S Beaser Order online through Amazoncom 1995
ADULT
Joslin Guide to Diabetes: A Program for Managing Your Treatment
FAMILY
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Mayo Clinic on Managing Diabetes: Practical Answers to Help You Enjoy a Healthy and Active Life Controlling Diabetes the Easy Way
Edited By: Maria, et al Order online through Amazoncom
2001 ADULT 1998 ADULT 2002 ADULT/ TEEN ADULT/ TEEN
By: Dimitry S Mirsky Order online through Amazoncom
Putting Your Diabetes on the Pump
By: The American Diabetes Association Order online through storediabetesorg By: Ruth Roberts, MA, et al Order online through Amazoncom By: MD Richard K Bernstein Order online through Amazoncom Edited By: David S Schade, et al Order online through Amazoncom Edited By: Sherrye Landrum, et al Order online through Amazoncom
Pumping Insulin: Everything you Need for Success with an Insulin Pump Dr Bernsteins Diabetes Solution: The Complete Guide to Achieving Normal Blood Sugars Revised
Updated 101 Tips for Improving Your Blood Sugars 101 Tips for Staying Healthy with Diabetes Avoiding Complications 101 Tips for Aging Well with Diabetes Diabetes Burnout: Preventing It, Surviving It, Finding Inner Peace The Diabetic Woman: All Your Questions Answered Women Diabetes: Life Planning for Health and Wellness Diabetes Pregnancy: What to Expect
2000
2003 ADULT 1995 ADULT 1999 ADULT
By: David B Kelley 2001 Order online through Allbookstorescom By: William H Polonsky Order online through Amazoncom By: Lois Jovanovic-Peterson, et al Order online through Amazoncom By: Laurinda M Poirier, et al Order online through Amazoncom 1999
ADULT ADULT/ TYPE 2
1998 WOMEN 2000 WOMEN
By: Task force for the American Diabetes Association Council on Pregnancy, et al 1992 Order online through Amazoncom WOMEN By: Hope S Warshaw, et al Order online through Amazoncom 2001 FAMILY
The Diabetes Food and Nutrition Bible: A Complete Guide to Planning, Shopping, Cooking, and Eating Smart Pumping for People with Diabetes
By: Howard Wolpert, MD 2002 PARENTS/ Order online through American Diabetes Association ADULT/ TEEN
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Real
Life Parenting of Kids with Diabetes
By: Virginia Nasmyth Loy 2001 Order online through American Diabetes Association PARENTS/ADULT By: Spike Nasmyth Loy Bo Nasmyth Loy 2000 Order Through American Diabetes Association PARENTS/ OLDER CHILDREN By: Jean Betshaart / Susan Thom 1995 2000 TEEN Order Through Josilin @ wwwjdrforg By: Hope S Warshaw, et al Order online through Amazoncom 2001 FAMILY FAMILY
Getting a Grip on Diabetes: Quick tips Techniques for Kids and Teens
In Control: A Guide for Teens with Diabetes Complete Guide to Carb Counting Diabetes Meal Planning Made Easy First Choice Cookbook The Doctors Pocket Calorie, Fat Carbohydrate Counter Nutrition in the Fast Lane: The Fast-Food Dining Guide
By: Hope S Warshaw 2000 Order online through storediabetesorg By: Colleen Bartley Order online through Amazoncom 2001
FAMILY 2004 FAMILY
By: Family Health Publications for the ADA Order online through wwwCalorieKingcom By: Franklin Publishing, Inc 2004 Order online through wwwfastfoodfactscom 1-800-634-1993
FAMILY
All publications listed above may be found in many bookseller locations Contact your local store for more information Periodicals Countdown published
quarterly Teen Countdown new publication Diabetes Forecast 12 issues per year Diabetes Care 12 issues per year Diabetes Cooking 6 issues per year Diabetes Self-Management 6 issues per year Diabetes Health Magazine 12 issues per year Recently published as Diabetes Interview
Order through the Juvenile Diabetes Research Foundation Order through the Juvenile Diabetes Research Foundation Order through the American Diabetes Association Order online through MagazineCitynet Order online through MagazineCitynet Order online through MagazineCitynet Order at PO Box 668, Fairfax, CA 94978-0668 wwwdiabetesinterviewcom
All publications listed above may be found in many bookseller locations Contact your local store for more information RI Local National Resources Addendum HEALTH-RI 2004
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Diabetes Outpatient Education What is a Diabetes Outpatient Education DOE Educator?
Certified DOE educators are trained to provide state-of-the art diabetes education information and treatment methods to patients with diabetes and other related chronic diseases
Where do the DOEs work in RI?
DOEs serve in 11 hospitals, 6 physicians practices, 6 pharmacies, 4 independent practices, 3 senior centers, 2
community health centers, 2 non-profit agencies, the VNA Contact Lonnie Beattie at 401222-4421 OR visit the DOE web site at: http://wwwhealthrigov/disease/diabetes/doehtm
How can I contact a DOE educator for more information about state-of-the art diabetes education and treatment methods, OR just more information about DOE programs?
Endocrinologists Doctors
Please check with your health insurance plan for a list of contact names, information and insurance coverage for particular health care providers
Licensee Verification Site can be found on the RI Department of HEALTH website:
http://wwwhealthrigov/hsr/professions/Licensehtm
This Web Site provides public access to all information on individuals, facilities and other entities licensed or certified by HEALTH-RI
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