DECA Mission Statement: The Diabetes Education and Camping Association promotes ship training initiatives for diabetes camps internationally in concert with the …
Diabetes Education and Camping Association Newsletter
January 2008
DECA Mission Statement: The Diabetes Education and Camping Association promotes communication, provides education and serves as a worldwide voice to advance diabetes camping programs which meet the needs of all individuals and families
2008 Diabetes Camp Conference
DECA will hold its 2008 Diabetes Camp Conference at Camp Victory Millville, PA October 15 19 The conference host camp is Setebaid Services, Inc One of our keynote speakers will be Dr Michael Bliss, author of The Discovery of Insulin Shuttles will be available for those flying into Philadelphia conference begins at 6:00 pm on Wednesday, October 15 The
This conference is aimed at professional staff doctors, nurses, dieticians, psychologists, diabetes educators, etc, as well as camp administrators and program staff We hope to have your camp/ organization represented For further information, please contact DECA Executive Director, Lorne Abramson, at labramson@eastlinkca
INSIDE THIS ISSUE
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Planet D Inspired by Diabetes Building Diabetes Teams at School Campamento Diabetes Safari 2007 Chris Thurber Launches Leadership Essentials DECA
Membership Form DECA Camp Membership Form
1 2 3 5 6
2008 Camping Conference 2008 Camp Database Camp Membership D-Lead Council Camp Membership Abbott Diabetes Care to Fund Second Printing of Diabetes 101
Camp Database Update for 2008
The Diabetes Education and Camping Association is currently in the process of updating its camp listings for 2008 Our goals of updating the camp/program database are to receive complete information for our corporate partners and to provide a detailed organization listing for our DECA member camps We hope to increase traffic to individual organization websites, to highlight ACA accredited camps and DECA member camps, and to simplify information provided to DECA website visitors DECA asks that you complete the information exactly as requested on the Excel file update Excel file for 2008 camp updates If your dates are not solidified yet, please email that information also Should you know of any new programs that are just starting, but that we do not have listed, we would appreciate that information, as well Please email the attachment to kathylatimer@charternet Thanks to the many camps who have already responded with their 2008 updates
DECA
Membership
The Diabetes Education and Camping Association DECA is a cooperative, networking association of people who are involved with diabetes camps on an international level You can help to support the DECA by renewing your present membership in the organization or by becoming a new member Presently, there are two membership categories, Regular and Life memberships based on a calendar year The annual cost is 50/US for Regular membership and 400/US for Life membership Payment should be made to the Diabetes Education and Camping Association or DECA, and mailed to the following address: DECA, PO Box 385, Huntsville, AL 35804 A membership form can be found in this newsletter or on the DECA website wwwdiabetescampsorg You are asked to complete this form when renewing your membership Most of our correspondence is sent via email and this is helpful as we keep our database information updated The DECA website is also another way for you to keep current with the organization through our newsletters, the message board, listing of camps in the US and internationally, as well as other related information The DECA organizes an international camping conference each year Conferences in
even-numbered years serve the entire diabetes camping community, with workshops for Medical and Dietary staff, Program staff, Administrators, as well as Corporate sponsors Conferences in odd-numbered years will focus on camp staff 18 years of age and up Should you have questions regarding your membership status, please contact Kathy Latimer at kathylatimer@charternet Please let us know if you would like to be invoiced for your membership fees each year We look forward to hearing from you
Join/Renew with a DECA Membership
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Diabetes Camp Leadership Development Council D-Lead
Thanks to the generosity of the Medtronic Foundation, the Diabetes Education and Camping Association is pleased to announce the creation of the Diabetes Camp Leadership Development Council D-Lead D-Lead is a coalition that develops leadership training initiatives for diabetes camps internationally in concert with the mission of the Diabetes Education and Camping Association Applications from young adults between the ages of 18 and 30 were accepted and reviewed anonymously by the Board of Directors of DECA, with the final recommendations made by a subcommittee of the Board Considerations were made regarding
geographical representation and having one representative per camp The Board was impressed by every applicant Each one is a passionate young adult who is already an active leader in diabetes camping; a role model for others to follow We encourage all the applicants to stay involved as the D-Lead initiative progresses The nine enthusiastic, committed young people chosen for the D-Lead Council are: Lara Abramson–Camp Morton/Maxwell Nova Scotia, Canada Andrew Gaul–Camp Carowanis Quebec, Canada Jennifer Goerzen–Bearskin Meadow Camp California Meagan Hennenfent–No Limits Diabetes Indiana Lisa Henning–Camp Hodia Idaho Sara Latimer–Camp Seale Harris Alabama Lucas Morgan–Camp Setebaid Pennsylvania Ally Paschal–Camp STIX Washington McKenna Wilson–Camp Conrad/Chinnock California Please join us in congratulating these enthusiastic individuals The DECA Board is confident that each of those selected are talented and motivated leaders in diabetes camping, who will together serve as an effective team to enhance youth leadership
REQUEST FOR ARTICLES
We would like to hear from you If you have a camp story, camp recipe, pictures, or other articles that you wish to submit for the DECA
newsletter, please email them to kathylatimer@charternet They should be sent by the 15th of the month you wish them to appear
Is your camp a member of DECA? Join today with a Camp Membership
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We look forward to hearing from you
by Tom Karlya
Vice President of Development for dLife Executive Producer of dLifeTV
The annual knock came upon my door Come in, I said Hi Tom, I was anticipating this meeting You were? Yes Quite frankly, I was warned Interesting May I ask by whom? My predecessor Last year received a good deal of feedback, and even though his case was pleaded, termination was the result I was warned that it might happen again, this time to me To be fair, this process occurs yearly and its not really your fault As long as diabetes exists, it is our job to usher out the old and welcome a replacement We all need the hope that accompanies a new year Please, sit down, lets chat Was I that bad? No 2007, you werent But that does not offer those of us who deal with diabetes every day much consolation And Im only speaking from what I know as a Diabetes Dad I just cannot imagine what its like to live with this everyday like those who do, those people we love a lot and are
important to all of us But I showed promise, didnt I? There were many great things likelikewell the blogging community for one Tu Diabetes burst on to the scene along with dLifes Blogabetes and the whole blogging community took their existence and kicked it up a notch Not just the stalwart insightful sites like Six Until Me, and Diabetes Mine The blogging community in the diabetes field has become a force to reckon with, being quoted welleverywhere Not even to mention the communities that exist out there like in Myspace and Facebook I did that, in my term Undeniably, 2007 All of these have grown in exponential leaps and bounds But And how about over 250 buildings lit up in blue around the world for World Diabetes Day? That was no easy feat You asked for a united front and clearly the IDF had an incredible effort Thats also true but Im sorry, I dont mean to ramble on but never before has one year done so much in bringing the issue of diabetes to the forefront Education programs excelled in so many arenas: Jim Turners one man show; The dLife Foundation was born and raised over 40,000 to help a diabetes center on Long Island in its first event; Fran Kaufman and the Discovery Channel
presented a film dealing with the worldwide epidemic; dLifeTV had the best year ever educating the world about diabetes with even an Emmy Award Nomination; and even pharma companies partnered with so many great organizations; MY GOODNESS, EVEN AL ROKER GOT INTO THE ACT AND I EVEN GAVE JOSLIN A RACE CAR, FOR HEAVENS SAKE Neither of us spoke immediately following the outburst 2007 had a point 2007 looked down at the floor and spoke in a whisper I needed more time 2007 looked me straight in the eye as a tear formed and rolled to its cheek I just needed more time I wanted to be THE year, I really did Never before have I felt so badly 2007 was a good year for the diabetes education in America, but while the muchneeded attention was being given to education, the one main objective still laid dormant The silence between us was deafening Finally I spoke I admit that there were many items on the agenda and you certainly crossed off a number of them But you have to understand that ever since that disastrous Decade for a Cure, we take broken promises very seriously False hope does not sit well and the only thing worse is when no, or little hope, is given I am afraid you are guilty of both
How? continued on page 5
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The inhaled insulin and the heart drug were two major disappointments Many people were looking to these and when they failed, so did you, 2007 Outside of a few minor hiccups in the research world, advancements werent what we expected But I know, the holy grail - the closed loop system Its not there yet, although some advancement has been made Same with more information on the bodys ability to accept islet cells without rejection But Im afraid its just not enough Im gone? Yes 2007, I am afraid its time to let you go I have talked with 2008 at length and our hopes are now in the hands of next year, your replacement No more words were spoken 2007 got up, crossed the room, and left, closing the door behind it I stared at the door Sixteen years have walked out of my office, allowing the hope of a new year to enter This marks the arrival of another new year for Kaitlyn, for us, and for millions more to entertain a new year of hope The hope does not die with each year that passes for me, but I always wonder if complacency is setting in elsewhere Its the responsibility of all of us to stay involved in the fight to remind people, organizations, foundations,
research centers, hospitals, doctors, educators, government, presidential candidates, elected officials, adults, kids, media, and anyone else who will listen that this is a disease that we must continue to fight with all the force we can muster I look forward to the year that arrives that is the one we all have been waiting for Im a Diabetes Dad
View another Diabetes Dad article by Tom Karlya, Donate in the Know, at http://wwwdlifecom/dLife/do/ ShowContent/daily_living/Viewpoints/t_karlya_012508html Thanks to Tom for sharing his articles with DECA
DECA Camp Membership
The board of DECA began offering camp memberships in 2006, with 21 camps joining As the web site of the Association has become a more important informational tool, it was felt that the DECA name would carry benefit to individual camps Since families and corporate partners might now first learn of your camp through the DECA web site, we felt that there would be name recogni tion if your camp could also say that they were a DECA member
A Camp Membership does not imply or require accreditation DECA will encourage camps to meet ACA standards, however, since the Association is a worldwide organization, ACA
accreditation is not used in all countries DECA is an organization of sharing Through the newsletters, confer ences and direct contacts among camps, all of the camps that have been active in the Association have benefited greatly Staff exchanges, material and idea sharing have grown each year Most important, however, is the persontoperson contact among camp people of all levels
Being able to advertise membership in DECA on brochures, letterhead and at the camp would be another means to interest parents and corporate partners in our programs It would be yet an other good logo to put on our materials, which does catch the eye of those we want to notice our programs
The Membership Committee and the DECA Board of Directors and Advisors request that a 100 camp membership fee be solicited each year A camp membership does not replace an individual membership, nor does it bring any of the entitlements of an individual membership when deter mining conference discounts of fees charged
We look forward to having your camp join us in support of our efforts to bring more visibility to DECA A membership form can be found in this newsletter or
downloaded from the DECA web site, wwwdiabetescampsorg Please let Kathy know via email kathylatimer@charternet should you wish to be invoiced for your camp membership dues
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Diabetes 101
Abbott Diabetes Care Funds Second Edition
by Shelley Yeager The need for Diabetes 101: A handbook for camp directors, coaches, teachers, nurses and others who have children with diabetes in their care has greatly surpassed expectations Funded by the Wellmark Foundation in Iowa, and unveiled at the DECA conference there in 2006, the manual served as syllabus for an introductory diabetes seminar by the same title Diabetes 101 covers an array of diabetes topics, including an overview of the types of diabetes, diabetes management routines, meal planning, exercise, hypo- and hyperglycemia, insulin administration, emotional adjustment to diabetes, and sample forms After the Iowa conference, DECA quickly distributed every copy Requests for it continued making it essential to find a way to publish a second edition Our good friends at Abbott Diabetes Care, under the attentive eye of Jay Dunigan, have come to the rescue and are generously funding the design, reprint and expansion of the manual The
second edition, due to be released in early spring 2008, will have an additional chapter on continuous blood glucose monitoring, technology that will very quickly become commonplace in pediatric diabetes care Diabetes 101 will be distributed to accredited camps through the American Camping Association, diabetes camps through the DECA database, the Association of Camp Nurses and through other sources close to DECA In the future, it will also be made available through the DECA website If you would like to be on a list to receive a copy of Diabetes 101 and are not currently on the DECA database, please send an email to kathylatimer@charternet
DECA Toll Free Number in North America 1-866-980-DECA 3322
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The American Diabetes Association Expands Commitment to Youth with Type 1 Diabetes
Tesch West, ADAs National Youth Advocate, emphasizes the critical need for support and resources
For many years, the American Diabetes Association ADA has helped families and health care providers manage type 1 diabetes through resources and local programs including ADAs Diabetes Camps and Family Resource Networks The ADA recently expanded its commitment to kids with type 1 diabetes by weaving all of
its programs and resources for these youth under a new umbrella: Planet D Explore Discover Connect One way kids with diabetes can experience Planet D is online at wwwdiabetesorg/planetD On these Web pages, ADA provides kids with a virtual opportunity to explore more about diabetes, discover new ways to manage their disease, and connect with others like them in a completely safe and secure social net-working environment Bookmark and share this link wi 
th your patients: wwwdiabetesorg/planetD The first place kids with type 1 diabetes will experience Planet D is online, said Tesch West, National Youth Advocate for the ADA This is so exciting for kids with type 1 and will help them gain access to information and get support by talking with other kids who are dealing with the same issues The Planet D Web site provides a completely safe and secure online environment for youth to leverage diabetes management tools, learn about issues affecting people with diabetes, build personal D-identities and interact with other youth through a variety of social networking opportunities including message boards, personal sharing and online polls In the coming months, corresponding pages will be added
for parents, educators, ADA Family Resource Network members, and Diabetes Camp attendees as well as additional programs and resources for children affected by type 1 diabetes that are part of the Planet D initiative One of my biggest priorities as the National Youth Advocate for ADA is to highlight the importance of education, said West Now, through Planet D, the ADA is doing just that and giving kids with diabetes the opportunity to connect with each other West was diagnosed with type 1 at the age 10 and has been an active volunteer with ADAs events and programs for many years Now as the National Youth Advocate for the American Diabetes Association, West will generate awareness of the seriousness of diabetes, and discuss ADAs efforts to increase funding for diabetes research to protect people with diabetes against discrimination in school and in the workplace, and to make sure everyone with diabetes has access to affordable, quality health care Tesch will also be traveling around the country speaking with children and adults alike about the importance of getting involved with the ADA For more information on type 1 diabetes or the Planet D initiative, please visit
wwwdiabetesorg/planetd continued on page 8
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The American Diabetes Association is the nations premier voluntary health organization supporting diabetes research, information and advocacy The Associations mission is to prevent and cure diabetes and to improve the lives of all people affected by diabetes Founded in 1940, the Association provides services to hundreds of communities across the country For more information please call the American Diabetes Association at 800-DIABETES 800-342-2383 or visit wwwdiabetesorg Information from both these sources is available in English and Spanish Submitted by Shana Funk Manager, Youth initiatives American Diabetes Association
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Managing diabetes brings challenges each day Whether you have diabetes, know someone with diabetes or help patients as a health care professional, those challenges require strength and perseverance And they can also inspire So, how are you inspired by diabetes? If youre affected by diabetes in any way, youre invited to join the Inspired by Diabetes Creative Expression Competition, a global and national contest asking people with diabetes, as well as their family and friends, to express how diabetes has had an impact
on their lives — and share those stories with others around the world Inspired by Diabetes is global collaboration between Eli Lilly and Company and the International Diabetes Federations Unite for Diabetes initiative In the United States, the American Diabetes Association is serving as the Inspired by Diabetes US national advocate The Inspired by Diabetes competition seeks expressions of the challenges and triumphs of the diabetes journey through art, essay, poetry, photography and music Children, people with diabetes and their family members and friends are encouraged to enter the contest Health care professionals are also invited to enter I grew up in a family with 23 members who lived — and died — with this disease and I know how every single day with diabetes can be a new challenge, said Darlene Cain, Chair of the Board, American Diabetes Association I have witnessed the ups and downs of diabetes firsthand and have seen the courage and strength it takes to live with this disease I have been inspired to realize that I have a lot to contribute in the fight against diabetes Im not a nurse, a doctor, or a researcher, but I have the drive and the passion to make a difference The
Inspired by Diabetes competition is a powerful way to raise awareness of this disease and honor the person who inspires you, added Mrs Cain Inspired by Diabetes builds on the theme of IDFs World Diabetes Day, dedicated to children and adolescents living with or at risk or diabetes worldwide The spirit of the competition is to bring families and people with diabetes together to raise awareness of the global burden of diabetes — and draw particular attention to people who do not have the resources they need to fight the disease By entering the competition, participants can have a direct impact on the lives of children with diabetes around the world When people enter the contest, they will receive two blue circle diabetes pins, illustrating the global symbol for diabetes For each set of pins distributed, a dollar will be donated to the International Diabetes Federations Life for a child Program, which provides life-saving diabetes supplies to more than 500 children in 13 developing countries continued on page 10
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For every entry received in the United States, Lilly will also contribute funds toward diabetes youth outreach initiatives in the US, including diabetes camps ADA is the
largest provider of camp programs in the US for children with diabetes and their families ADA also helps bring together parents of children affected by diabetes through its nationwide Family Resource Network The journeys traveled by people with diabetes and their families - both the ups and downs have been inspiring us at Lilly for more than 80 years The Inspired by Diabetes contest will allow people affected by diabetes to creatively express their feelings about how diabetes has impacted their lives, and further inspire people along the say, said Matt Beebe, Brand Leader, Diabetes, Lilly USA With appropriate care and education, children with diabetes can live full, happy and healthy lives All children with diabetes have the right to the best care their country can provide, said Dr Francine Kaufman, Chair of the IDF Consultative Section for Child and Adolescent Diabetes and Past President, Medicine and Science, American Diabetes Association In developing countries, however, many children die soon after diagnosis; many others face the burden of diabetes complications while still young No child should die of diabetes By supporting the Inspired by Diabetes initiative and by wearing
the diabetes pin, people can help save lives and encourage governments everywhere to establish appropriate care for children with diabetes To learn more about Inspired by Diabetes and how to enter the Creative Expression Competition, please visit: wwwinspiredbydiabetescom
2008 Camp Updates Needed
If you have not emailed your 2008 camp updates to Kathy Latimer kathylatimer@charternet, please do so as soon as possible We will be giving our corporate partners your information very soon, as well as updating the DECA web site–you dont want your camp left out We look forward to hearing from you Thanks to those camps who have already responded Excel file for 2008 camp updates
DECA Toll Free Number 1-866-980-DECA 3322
in North America
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Building Diabetes Teams at School
by Rebecca Smith Program Manager, Diabetic Youth Foundation CA Every day at school, children with diabetes face unexpected situations A 10-year-old girl gets a low blood sugar during an exam in history class A teens blood sugar is 400 in gym class and his teacher tells him to walk it off A 12-year-old boy who has diabetes as well as ADHD routinely blames his back-talking and attitude in class on his blood sugars; when
he checks and is in range, he is sent to the principals office To make the situation more difficult, schools in California and around the country have a shortage of nurses Most schools dont have a nurse present at all times Some nurses go from school to school all day long, trying to keep up with not just the students with diabetes, but all of the other health issues students deal with on a daily basis The result is that many parents spend half of their day back and forth from their job or home to the school, to help their child with diabetes care But they are not there for all of the unexpected moments throughout the day that diabetes brings Many school nurses, especially those who have to travel from school to school to help with insulin adjusting, tell us that type 1 diabetes is the number one issue that they face in their schools Nurses need help from other school personnel if they want to provide the type of care that families want for their children in school Teachers may be anxious about caring for students with diabetes because they dont always know what to do when issues arise Oftentimes the most intimidating thing about diabetes is just lack of knowledge; many people dont
realize that diabetes is an at-home condition, that anything that needs to be done can be done by someone without a medical degree The goal is to have a diabetes team instead of just one or two individuals in charge of taking care of a child This lessens the pressure on each individual caretaker, some of whom have only had basic diabetes training, increasing the likelihood that when an unexpected challenge comes up, someone who is confident and knowledgeable will be there to help the child through it Last fall DYF ran its first Building Diabetes Teams at School conference for school nurses, teachers, and administrators who work with students with diabetes At this conference we address as many of the diverse aspects of diabetes as possible, including blood glucose monitoring, insulin administration, legal aspects of diabetes in schools and 504 plans, and psychosocial challenges We discovered that there is a huge need for education in this area, and we have begun to hold the conference bi-annually Along with basic diabetes training on blood glucose monitoring and carbohydrate counting, we provide hands-on training of insulin pumps for school personnel This enables them to become more
comfortable with the insulin therapies that their students are beginning to use more and more We also address the psychosocial challenges students face living with diabetes, such as depression, isolation, and communication issues, and how school personnel can assist them in overcoming these challenges Our staff panel allows school personnel to hear first-hand how growing up with diabetes affects personality, confidence, and peer interactions, with such perspectives as: How do I tell my friends about my diabetes? Why do I feel like no one understands what I am going through? I am so embarrassed when I get low and have to leave the class cant I just sneak some candy so no one notices? Recognizing these issues allows nurses and teachers to better understand and care for their students with diabetes Knowledge truly is power the power to help a student with diabetes thrive at school and in life The education that nurses and other school personnel receive at DYFs Building Diabetes Teams at School conference allows them to return to their schools with a new understanding of the complexities of diabetes and how to better help the students they work with As organizations that specialize
in diabetes care and programming, we all have the opportunity to help educate the individuals who care for our campers in their school setting - the place where, aside from at home, most of these kids spend the majority of time Through nurses, teachers, and administrators, we can help support our campers while they are not at camp Together, we can help our children succeed in school and in life
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Campamento Diabetes Safari 2007
12 - 15 mayo 2007 / 12 - 15 May 2007
Photos of this years Campamento Diabetes Safari, for children and adolescents from 7-18 years old, who have type 1 diabetes mellitus, are now available on the internet: http://wwwcontinentscom/diabetes-safari07FOTOShtm
2008 Campamento 15 - 18 May 2008
Dr Stan De Loach Certified Diabetes Educator Director
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Chris Thurber Launches Leadership Essentials
After two years of development, Chris Thurber has launched Leadership Essentials, a premium library of online video training modules To preview this premium library of online video training modules, go to: http://elearningcampspiritcom or CampSpiritcom and click on Leadership Essentials Each module teaches critical leadership skills that every camp counselor needs to
effectively deal with the social, behavioral, and disciplinary situations that arise at all day and resident summer camps Together, the modules complement the face-to-face training that can be conducted with your staff Leadership Essentials combines an accessible, cost-effective format with cutting edge content And from your Director Dashboard, youll be able to track when staff log on, who has watched which modules, and what their post-module quiz scores were You can even add custom content for your staff in the form of PDFs or MP4s Visit http://elearningcampspiritcom to learn more Many have requested a demo of the site so that they can see more of the videos and experience the many cool administrative features that directors get once they subscribe eg, tracking who among your staff have logged on, how many training modules theyve watched, and what their quiz scores were If you would like to receive a temporary director account, please contact one of Chris colleagues at Target Directories Hagai Maidenberg x223 or Evan Heltay x221 would be glad to show you the site and answer your questions 877 777-7738 You can also e-mail hagai@targetdirectoriescom or evan@targetdirectoriescom
There are two sample videos that can be previewed Treating Homesickness and Staff Use of the Internet The subscription modules are a bit longer 7 to 9 minutes and contain much more footage of real counselors and campers demonstrating skills All twelve modules come with an online quiz and a downloadable handout Should you have any questions, Chris can be contacted at chris@campspiritcom
DECA 2008 Conference Camp Victory - Millville, PA October 15 - 19, 2008
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Diabetes Education and Camping Association DECA Membership Form 2008
Become a Member
Todays Date Name Camp/ Company Title/Position Mailing Address City State/ Province Postal Code Country Daytime Telephone Home/Cell Telephone Fax Email Address Camp Affiliation if applicable _____Regular Membership: 50/US 12-month membership active through December 31, 2008 _____Lifetime Membership: 400/US
Payment should be made in US Dollars, payable to Diabetes Education and Camping Association or DECA Lorne Abramson, Executive Director Please mail to:
Diabetes Education and Camping Association DECA PO Box 385 Huntsville, AL 35804 USA For additional information, please contact Lorne Abramson at labramson@eastlinkca toll free in North
America 866-980-DECA, or Kathy Latimer at kathylatimer@charternet
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Diabetes Education and Camping Association DECA Camp Membership Form 2008
Date Camp/Organization Executive Director Camp Director PO Box Street Address City State/Province Postal Code Country Daytime Telephone Home/Cell Telephone Fax Email Address _____Camp Membership: 100/US 12-month camp membership, active through December 31, 2008 Payment should be made in US Dollars, payable to Diabetes Education and Camping Association or DECA Please mail to: Lorne Abramson, Executive Director Diabetes Education and Camping Association DECA PO Box 385 Huntsville, AL 35804 USA For additional information, please contact Lorne Abramson at labramson@eastlinkca toll free in North America 866-980-DECA, or Kathy Latimer at kathylatimer@charternet
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Source:diabetescamps.org
